FAQ/Help |
Calendar |
Search |
Today's Posts |
|
New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
Reply |
|
Thread Tools | Display Modes |
03-18-2008, 10:17 AM | #1 | ||
|
|||
New Member
|
I was very excited to find this sightand hope to find others in our position. My son is now 13. He was born with a myelomeningocoele. It was repaired when he was 10 days old. He developed normally.He walked and potty trained on time. He was thought to be a miracle. Around the age of 8or 9 he began to complain with foot pain it took two years for someone to listen to me. A MRI revealed a tethered cored and small meningocele. He had a second surgery in Dec. of 2005 to correct both. He now has not only lost feeling in the right foot and it is moving up his leg.This is the foot where the pain started before surgery. He now has lost the feeling in his left toes and the side of that fooot. We are told this is from scar tissue and have been advised by two doctors that surgery should now be done without problems with the bladder or bowel.THis is because each surgery produces this scar tissue and the scar tissue will cause other problems. The MRI in the spring of 2006 revealed the cord to be tethered and a small syrinx in the lower cord area. I was never told this by anyone. I read it when I picked up his medical records for a second opinion. I do not know anything about a syrinx but what i am reading does not sound good. If anyone has had these conditions or a syrinx please let me know your story. We are very interested in finding other young people with these same conditions.
|
||
Reply With Quote |
03-18-2008, 10:36 AM | #2 | |||
|
||||
Wise Elder
|
Hi Pam! Welcome to NeuroTalk!
Here is a link to our spinal disorders forum: http://neurotalk.psychcentral.com/forum22.html You might also benefit from using the search engine located in the toolbar near the top of every page. I hope you'll find some answers soon for your boy.
__________________
—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
|||
Reply With Quote |
03-18-2008, 11:32 AM | #3 | |||
|
||||
Elder
|
Hi Pam
Welcome to Neurotalk. I hope you find some answers to help your son.
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
|||
Reply With Quote |
03-18-2008, 12:33 PM | #4 | |||
|
||||
Elder
|
Hi Pam and Welcom to our little corner of the world!!!
Please feel free to roam around and join in anywhere!!! Abbie
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
Reply With Quote |
03-18-2008, 12:51 PM | #5 | |||
|
||||
Senior Member
|
Hi there Pam! Welcome to Neurotalk!
__________________
. . LOVE DORRIE!! |
|||
Reply With Quote |
03-23-2008, 12:21 PM | #6 | |||
|
||||
Legendary
|
Hello Pam and another NeuroTalk welcome here. Please check out our forums and make yourself at home.
__________________
DM . |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
spinal cord stimulator | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Spinal Cord Stimulation | Spinal Disorders & Back Pain | |||
Spinal Cord Stimulator. | Peripheral Neuropathy | |||
Spinal Cord Stimulators | New Member Introductions | |||
Spinal cord stimulator? | Peripheral Neuropathy |