[lmsdar]

My daughter has been having severe stomach pains for months and her hand and feet go numb, we have been out of our house for 2 months due to a huge amount of mold we had discovered. Well in Dec we put our dog to sleep, she was having stomach problems and she was sleeping more than norm and sometimes she would get wobbly, like disorientated, we took her to see 4 diff vets, they took sonograms, blood, and xrays, several times, no one found anything, they chalked it up to gastritis and told us to give her pepcid. after she was losing weight, she was 35 lbs and went to about 25, after months we finally put her to sleep. By no means am I comparing my dog to my daughter I just find it ironic, that since my daughter has these symptoms, I have had her at her pediatrician several times checking her blood, thinking maybe she was anemic, nothing, she went to a GI Dr., he prescribed her on prevacid, for 6 weeks and said we will see then, they sent us to a Neurologist, he did a Brain MRI and found something called a Chiari Malformation, before I found about that, I took her to the ER, she was having severe stomach pain, they ran blood tests, sonogram on her liver, pancreas, and her gallbladder, came back and said nothing, sent her home., saying its gastritis and her gave her a script like the GI Dr did, so do I decided to have a lab run several tests on my daughter for fungus culture, mold, stachybotrsis, and bacteria. Well after everyone telling me nothing, comes to find out they found the bacteria, and they said they found H. Pylori. Now she is on 4 diff medications, I asked her ped if she could have ulcers or anything maybe they should run a catscan on her abdomen and he said not now, but what if they are wrong? I dont think if I wasnt so persisant for my daughters sake they wouldnt of kept on. Now we are going for a consultation with the neurosurgeons Friday, I dont know know if there is a connection or a link, this is stressing me out, I would just like to know if there are any links or connections, maybe with aspergillus penicillium or black mold or H. Pylori, or chiari malformations? or is it just what it is?

[terry]

I'm so sorry to hear that your daughter is suffering with abdominal pain. My 12 year old son has had abdominal pain since September . After many trips to the ER, an upper and lower endoscopy, he has been diagnosed with RND. He has burning, shooting pains, his stomach hurts to touch, he is nauseaus and is constantly fatigued. He was on amitriptaline and neurontin and prevacid, but they didn't help, so he is now medication free. He is on the waiting list for the intense physical therapy program at Children's Hospital of Philadelphia - we are hoping to begin in April. He was out of school for 3 months, but after his official diagnosis, his doctor wanted him to try and get back to a normal routine - this was very difficult and still is. His pain recently spread to his back and arms - that was very painful - he could not go to school, but I made him exercise and his back and arms are feeling better.

I'm curious to know if it is related to the H. Pylori -I'm not familiar with that. Please let me know how your daughter does and if she shares any of my son's symptoms.

I'm sorry for her pain and I hope she finds relief soon.

Terry

[AfterMyNap]

Hi Lmsdar! Welcome to NeuroTalk!

Here is a link to our chiari forum, I hope you'll get some answers for your boy soon. Feel free to join in anywhere.

http://neurotalk.psychcentral.com/forum71.html

[lmsdar]

Hi, I am sorry to hear about your son and thank you for responding. Today my daughter goes for an mri on her spine, tomorrow she goes to miami childrens for a consultation for the mri on her brain, her symptoms are very fatigue all the time, numbness in her hands and feet, severe stomach aches, sometimes seems depressed not really sure about that one, she does have a twin and she doesnt seem to be the same as far as sleeping, etc. They were both active cheerleaders for years. last year her sister got injured from cheerleading practice, shattered her humerus bone, had 5 surgeries, and nerve damage, her range of motion is about 65, so now we are going back to philly, shriners for her 6th surgery where they will do a contracture release and shave down the bone, hopefully her arm will be alot better. after the injury last year her sister quit didnt want to do it anymore because her twin wasnt with her, so ifigured her stomach pains or the numbness was due to being inactive after being so active for so long and the stomach aches were because she is vegetarian, but it didnt go away, thats when i kept on reading and persisting to the hosp, her ped, and the drs, now here we are. so next week when i take my daughter to shriners i will ask the doctors up there, if they can refer me to someone, other than down here. they were great up there, thats why i am going back there after her last surgery rather than stay down here. i will let you know, what and when i find out, thanks. bye

[terry]

I will keep both of your daughters in my thoughts and prayers - things like this shouldn't happen to children. I'm here if you ever need to talk.

Let me know how things go.
terry

[Darlene]

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

[DM]

Hello and Welcome to NeuroTalk. Please make yourself at home and glad you found us.

[dorrie]

Hi Imsdar Welcome Aboard!