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Old 04-02-2008, 03:11 PM #1
msrozhou msrozhou is offline
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Default Recently diagnosed

After several different MRIs- thoracic spine MRI, cervical spine MRI and brain MRI, my neurologist gave me the diagnosis of MS on March 19th. I have been on baclofen 1 and 1/2 tablets three times a day for about 2 months. I am scheduled for a spinal tap on Friday, April 11th. She gave me some literature on MS and also a package on Rebif. Giving yourself shots sounds pretty scary. I should have asked but I forgot. Before she prescribes the Rebif, I have to have the spinal tap. Does anyone have an idea why spinal taps are done? Thanks
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Old 04-02-2008, 04:24 PM #2
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Hello, msrozhou amd welcome to NeuroTalk

I see you have already found the MS forum. Please feel free to look around and let us know if we can help.
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Old 04-02-2008, 05:18 PM #3
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Hello and Welcome to NeuroTalk. Please make yourself at home.


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Old 04-02-2008, 07:29 PM #4
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Quote:
Originally Posted by msrozhou View Post
After several different MRIs- thoracic spine MRI, cervical spine MRI and brain MRI, my neurologist gave me the diagnosis of MS on March 19th. I have been on baclofen 1 and 1/2 tablets three times a day for about 2 months. I am scheduled for a spinal tap on Friday, April 11th. She gave me some literature on MS and also a package on Rebif. Giving yourself shots sounds pretty scary. I should have asked but I forgot. Before she prescribes the Rebif, I have to have the spinal tap. Does anyone have an idea why spinal taps are done? Thanks
Hi there.
Spinal Taps (Lumbar Punctures), are done to see if there is anything in your cerebrospinal fluid that will tell the doctor what might be wrong with you. They find out LOTS of information from this fluid.

In my husband's case, they found protein in his spinal fluid. He had neuropathy for years.

Because they found protein in the spinal fluid, he now gets IVIG once a month.

Don't be too nervous about the spinal tap.

My husband felt nothing. He said it went just fine.

You'll do great!!!
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Old 04-02-2008, 07:50 PM #5
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The docs chose not to do a spinal tap on me because of the side effects it might cause. They did am MRI and my results were clear enough for them to make a diagnosis. I was diagnosed 17 yrs ago.
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Old 04-03-2008, 09:20 AM #6
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Hi Msrozhou! Welcome to NeuroTalk!

I hear you've already landed over at the MS forum, so let us know how we can help.

The shots really aren't a big deal, I did them for several years. You'll do fine! See you over there.
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Old 04-03-2008, 10:52 AM #7
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Default Thanks

Thanks for the warm welcome everyone. I am just so overwhelmed with trying to find out information on MS. My neurologist gave me some pamphlets and an informational package on Rebif. I think that is what she wants me to start taking after the results of my spinal tap. I am a little concerned about giving myself the shots. I should have asked her but forgot, how long does a person stay on a medicine like Rebif?

Is it really easy to give yourself the shot? In the pamphlet it says that you should take the shots at night but can you also take them in the morning? In case I cannot bring myself to give my shot in the beginning, where I work we have firefighters and I am sure I can find one to give it to me.

Last edited by tovaxin_lab_rat; 04-03-2008 at 11:21 AM. Reason: Copied this post to Multiple Sclerosis Forum
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Old 04-03-2008, 11:18 AM #8
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Quote:
Originally Posted by msrozhou View Post
Thanks for the warm welcome everyone. I am just so overwhelmed with trying to find out information on MS. My neurologist gave me some pamphlets and an informational package on Rebif. I think that is what she wants me to start taking after the results of my spinal tap. I am a little concerned about giving myself the shots. I should have asked her but forgot, how long does a person stay on a medicine like Rebif?

Is it really easy to give yourself the shot? In the pamphlet it says that you should take the shots at night but can you also take them in the morning? In case I cannot bring myself to give my shot in the beginning, where I work we have firefighters and I am sure I can find one to give it to me.
You might want to go on over to the MS Forum and start a new thread and ask these questions. You will get a whole lot more information there.

In fact, maybe I will just copy this post over there for you! There is an introduce yourself thread there so you can post on that (only if you want) and a social chat room called the Stumble Inn for those non-MS related things...so see you over there!
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Last edited by tovaxin_lab_rat; 04-03-2008 at 11:20 AM. Reason: copied last two posts to MS Forum
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Old 04-03-2008, 12:04 PM #9
msrozhou msrozhou is offline
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Thanks Cheryl and everyone for your help. I am 45 with 5 kids, four sons 16, 14, 12 1/2 and 8 1/2 and one daughter 5. My husband is disabled with limb girdle muscular dystrophy and I work full-time. I am a survivor and will continue to be. As mama bear said on the Bernstein Bears....."when life gives you lemons...make lemonade" but someone else sent me an email that said, "when life gives you lemons....ask for some Tequila and salt!"

Thanks for the support.


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Old 04-03-2008, 09:17 PM #10
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HI THERE ROZ....WELCOME TO OUR WONDERFUL COMMUNITY!!
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