Hi all,

My name is Bonnie Clay-Riley (smithclayriley is my user name). I'm from Nanaimo, BC (on Vancouver Island). I have been moving around trying to find the best spot to build a health team (it's a jungle out there) as my pd symptoms get worse (I was dx. 11 yrs. ago). I was doing well and working 8 yrs into this; that all changed when my agonist Bromocriptine was stopped and I started taking Mirapex. It took me down and I have unstable since. I am still hanging in (by my fingernails) trying to get help. I get horrendous side effects from Sinemet and l-dopa; both legs start shaking up to a hour and half following each dose I take. My legs go rigid as well. I am confused. It seems I do better without the meds except for my feet go numb and I get the creepy crawlies. I hope to find some answers and info. This forum looks like a good place to start.

Hi Bonnie! Welcome to NeuroTalk!

You have found an excellent place to start right here at NT. You might want to take a look in our PD forum for folks who have personal knowledge of your symptoms. Feel free to join in anywhere, and let us know if we can assist you with navigating the forums.

PD forum:
http://neurotalk.psychcentral.com/forum34.html

Thanks Cindy, much appreciated

and

to our little corner of the world.


Abbie

Thanks Abbie for coming out of your very dark space to welcome me to the forum. I know somewhat of this space. I was unrealistic and unprepared for what I faced starting pd medications from day one (11 yrs ago). I am ramping off dopamine because I have no choice; it is killing me. I wish you better days.

Bonnie