Hi,
I'm new to this forum but I have a question for anyone out there with MS. My 15yo daughter has just been told she has MS in her brain stem. Her history includes CNS Lyme disease, Babesia, Bartonella, Epilepsy, Ventricular Tachycardia to name a few.

She's had an abnormal BAER test, nystagmus, ataxia and her neurologist feels it is in the brain stem. We are very scared. Her neuro. and her Lyme doc want her to get IVIG, but we are in the process for that.

She has a central line and is on IV Rocephin, IV Zithromax, Keppra, Lamictal, Zonergran, Atenolol and a few other meds daily. All as a result of the Lyme infection not diagnosed and allowed to run rampant in her body since birth.

We need some input. Thanks. Lymiegal

Hi Lymiegal this is Cheri

I have copied your post over to our MS forum as well as I know members there are so helpful and supportive
here is the link to your post on the MS forum so you can check there for replies too
http://neurotalk.psychcentral.com/sh...ad.php?t=44892

I pray you will find guidance here on how to help your precious daughter

God Bless
Cheri

Hi Lymiegal! Welcome to NeuroTalk!

I'm so sorry your daughter is having such a time of it.....wow, she is on a lot of very strong medications.

I see Cheri has given you the link to the MS Forum. There is a very large MS group here and we'd love to have you join us. I've also posted the link to the Lyme and Other Microbial Conditions Forum. You might possibly find some help there, too.

http://neurotalk.psychcentral.com/forum91.html

I hope your daughter responds well to the treatment - I know this has got to be hard for you, too.

Kelly

Welcome to NeuroTalk from me as well.

I feel for you as any other mother would, knowing how hard this must be for yourself and your daughter. She certainly seems to have been through more than her own fair share lately, and I truly hope she gets relief soon.

Chemar and Herekitty have given you some good links to get you started, and I hope to meet you some more around the forums.

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

It is so hard for us to see our little ones have diffculity with medical problems. My thoughts and prayers are with you and her.I see you have been given some links, I am going to give one for epilepsy

Again welcome, looking forward to seeing you around.

Darlene

Hi, Lymiegal! Welcome to NeuroTalk!

Hi Hon:

You've been given very good advice and direction from the others here on Neurotalks. I can't add anything to what they said.

I can however give you a cyber hug.

Mother's Day is next Sunday.

You, above all, need to know how special you really are!!!

Take care,

Melody

Hello and Welcome to NeuroTalk. So sorry your Dau is having so much to deal with. Please take a look around and make yourself at home. So glad you found us.