[rsd-aura]

hi my name is aura i am from SC, I was diagnosed with rsd in my foot in Nov., My symptoms started imdiatly after nueroma surgry. Sinse then I have been in therapy, I have had a sypathtic nerve block, I had an epadural today for both legs, I am on morphine and zonegran. Right after being diag. I started feeling a tingling in my foot. Like someone haad put a tens unit on my arch and turned it on low, that type of sensation, then it wen to my calfs, then my nerves started jumping in the same area, and the muscles feel like they are moving and sometimes do contract on they're own. Well long story short here it is 6mnth later, that sensatio that strted in my foot is now all over my body. The Dr is telling me that rsd cant spread that fast, and that rsd dosnt cause tremors and i think they dontt believe me. My therapist does and has watched me deteariorate and is rying to help me. I donr know what to. Why are they trying to act like I am nuts. I am sared to death. The tremors have moved fat and are getting worse, now my voice is shaking. And sometimes when I get u in themorning my legs feel weak, I am losing more and more range of motion in my ankles and feet. I am only 48 yrs OLd. I read about dystonia. I believe I might be in the begining stages of that. Can abyone here help me think this through? Thank you for any help you can give. I am desparate. Aura

[Twinkletoes]

Hi Aura!!! Glad you found us here at NeuroTalk.

Sorry I don't know to respond to your questions. I can understand why you are frightened! Someone will no doubt come along who can help.

There is a forum especially for new folks that will help us get to know you better. One of the official welcomers will give you the link to that, I'm sure. (Sorry: technochallenged, here).

Anyway, welcome!!! Hope to see you around!!!

[Koala77]

Hello and welcome to NeuroTalk.

Here's the link to our RSD Forum, in case you've not already found it yourself: http://neurotalk.psychcentral.com/forum21.html

You'll meet some really lovely people over there Aura, so hopefully you'll get the answers that you're seeking.

[watsonsh]

Aura,

It was really great to meet you in chat tonight and spend some time together. Keep plugging away!

[Kitty]

Hi and welcome to NeuroTalk!!

[AfterMyNap]

Hi, Aura! Welcome to NeuroTalk!

[Darlene]

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene

[theMatrix777]

Originally Posted by rsd-aura

hi my name is aura i am from SC, I was diagnosed with rsd in my foot in Nov., My symptoms started imdiatly after nueroma surgry. Sinse then I have been in therapy, I have had a sypathtic nerve block, I had an epadural today for both legs, I am on morphine and zonegran. Right after being diag. I started feeling a tingling in my foot. Like someone haad put a tens unit on my arch and turned it on low, that type of sensation, then it wen to my calfs, then my nerves started jumping in the same area, and the muscles feel like they are moving and sometimes do contract on they're own. Well long story short here it is 6mnth later, that sensatio that strted in my foot is now all over my body. The Dr is telling me that rsd cant spread that fast, and that rsd dosnt cause tremors and i think they dontt believe me. My therapist does and has watched me deteariorate and is rying to help me. I donr know what to. Why are they trying to act like I am nuts. I am sared to death. The tremors have moved fat and are getting worse, now my voice is shaking. And sometimes when I get u in themorning my legs feel weak, I am losing more and more range of motion in my ankles and feet. I am only 48 yrs OLd. I read about dystonia. I believe I might be in the begining stages of that. Can abyone here help me think this through? Thank you for any help you can give. I am desparate. Aura

Hi: My number one question is: Why haven't you gone to another doctor for a 2nd opinion?
#2. If you have, what did he say?

You need a doctor that understands RSD. I suggest you bring you current doctor some documentation either from this site or from one of the RSD associations. They have tons of it excellent documents for just this type of situation.

As an RSD sufferer myself, I can personally attest to the fact that spreads can and do happen overnight. I went to bed one night with RSD in both hands/arms. Next morning, I woke up unable to walk and barely able to talk. Talk about scary!

I also have tremors. They started small and only occasionally. They have changed now to all the time ranging from big to little. It is very common with RSD patients.

I see a pain management specialist, a neurologist, and several others types. What "types" of doctors do you see? Usually, RSD therapy is a muti-faceted approach. One doctor may not be able to handle everything.

So, lower your stress level, educated your doctor or find another and educate yourself like you are doing by coming here. That's a good first step!

Let us know how it goes.