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Old 05-16-2008, 09:40 AM #1
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Default occipital neuralgia

Daughter's condition getting more painful since having occipital nerve severed.
What drugs are in nerve blocks? Does anyone know? SHe has taken Cymbalta (didn't help-nasty drug) and now is going on Topomax. Nothing is releivng the pain. Any ideas or help would be appreciated greatly.
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Old 05-16-2008, 10:18 AM #2
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Hi alices nice to met you welcome to neuro here is our forum for O.N.

http://neurotalk.psychcentral.com/forum105.html
I am sorry to hear what you and your daughter are going threw
i think you will find good info ,great people...dont forget to read the stickies at top of the link. . hope to see you around neuro again soon.
PEACE
BMW
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Old 05-17-2008, 09:29 PM #3
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Hi Alices!! Welcome to Neurotalk!
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Old 05-18-2008, 12:14 AM #4
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Alice,

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

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Old 05-19-2008, 08:51 AM #5
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Hello Alice and Welcome to NeuroTalk.

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Old 05-19-2008, 11:40 AM #6
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Exclamation Drugs that may help

Quote:
Originally Posted by alices View Post
Daughter's condition getting more painful since having occipital nerve severed.
What drugs are in nerve blocks? Does anyone know? SHe has taken Cymbalta (didn't help-nasty drug) and now is going on Topomax. Nothing is releivng the pain. Any ideas or help would be appreciated greatly.
Have you tried Gabapentin Gen. for Neroutin? This is what the doctor gave me for damage to my left arm and calf after a stroke. Be sure that you start out with a 100MG and go up from there as needed. I was started on the 300MG and they made me feel so out of it that I quit taking them. When I went to another Neurologist he started me on the 100MG and worked me up from there.
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Old 08-16-2008, 10:20 AM #7
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Quote:
Originally Posted by alices View Post
Daughter's condition getting more painful since having occipital nerve severed.
What drugs are in nerve blocks? Does anyone know? SHe has taken Cymbalta (didn't help-nasty drug) and now is going on Topomax. Nothing is releivng the pain. Any ideas or help would be appreciated greatly.
Hi Alice.I'm new to this site but was looking for some answers myself for my husband who has had O.N. for ten years now. His is an extreme case and the pain is excruciating and hard to watch. He's had the nerve stipped,severed and injected with everything you can imagine. Nothing has worked. The doctor warned us that severing the nerve could make it worse and that's just what happened.He is now waiting for a peripheral nerve stimulator to be placed in his head(electical pulses interupt the pain) but we live in Canada where you could wait forever to get surgery.As for Gabbapentin,my husband has been on it for 5yrs.(doesn't help) every kind of pain meds known to man and is now on Methadone(which also doesn't help).Meds are taking their toll on his health. My recommendation if her pain is really severe would be to look into a stimulator implant.It decreased my husband's pain and meds by half when he tried the temporary implant. There is also on You Tube a video of a gentleman who had the implant (showed his surgery and everything) and was pain free after that. Hope this helps.
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Old 08-16-2008, 03:44 PM #8
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Default occipital neuralgia

welcome.
there is a site for occipital neuragias on here so it will be worth you looking in.
i have o.t take tegretol, gabapentin 1800mgs, methadone, amytryptaline & nerve blocks of aneastic & steroids. at the moment am having a breather from blocks & using versitis patches which are difficult to stick on head & face
i`m just getting used to them but so far pain no different maybe early days i`m hoping so.
all the best & take care
jane
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Old 08-16-2008, 08:37 PM #9
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Smile Hi, Alices...

It's very nice to meet you. I was recently diagnosed with some form of neuralgia after being ill for six years, but it has nothing to do with my occipital nerve. However, I did take Cymbalta for a while, and like your daughter I found it to be rather useless and unpleasant. If I learn anything else, I'll try to pass it along. I go to see another specialist pretty soon. Best of luck for you and your daughter, and all my best wishes...
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Old 08-17-2008, 11:45 AM #10
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Hi, Alices! Welcome to NeuroTalk!

Geez, I hope you can get some answers for your daughter, I'm sure you are suffering right along with her. Feel free to join in anywhere, NT is a very friendly place.
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