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05-09-2008, 03:13 PM
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New Member
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Hiya ,
First message to be posted from me !!!!!! Anyone out there with Tarlov spinal cyst ????? Sounds naff, but what are your symptons? I am newly diagnosed after 2 years and 2 useless ops with an orthopaedic surgeon, now have to start again with a neurosurgeon, I am from the UK, NHS waiting lists are long, thought I might find sanity here !!!!!!!!!! ?? Poss ? |
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05-09-2008, 04:21 PM
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Wisest Elder Ever
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Hi Lillibet and welcome to NeuroTalk!
 I've posted the link to the Rare Diseases Forum where there is a sub-forum for Tarlov Cyst. I have MS so I don't visit that forum often but I'm sure you'll find some friendly and supportive people there. Please feel free to join in on any forum you feel comfortable on, though. There are a bunch of wonderful people here!  http://neurotalk.psychcentral.com/forum87.html
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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05-09-2008, 06:10 PM
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Legendary
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Hi there Lillibet. What a cute name that is.
Welcome to NeuroTalk, and as herekitty said, you'll meet some wonderful people here. Have a look around, and join in where ever you feel comfortable. 
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Eastern Australian Daylight Savings Time and my temperature . |
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05-10-2008, 12:58 AM
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Legendary
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 Lillibet, Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can. Again welcome, looking forward to seeing you around. Darlene 
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. "Life without God is like an unsharpened pencil -- it has no point.
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05-10-2008, 02:24 PM
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Legendary
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Hello lillibet and Welcome to NeuroTalk. Please browse around and make yourself at home. Glad to have you with us.
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DM . |
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05-11-2008, 12:17 PM
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Wise Elder
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Hi, Lillibet!
 Welcome to NeuroTalk!We have a great bunch here, I'm glad you've joined us.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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05-20-2008, 10:16 AM
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Hi Lillibet
Tarlov Cysts are not that rare, in fact about 4% of the population has them. I liken them to a balloon in the sidewall of a bike tire. When CSF pressure spikes up the balloon expands, pinching the nerves around it. Most drain out quicly after they fill, causing short term discomfort. For some of us the cysts stop draining and cause chronic problems. It sounds like you are in that category. Last year a Foundation was organized to conduct research and educate docs. Sadly most don't understand TCs so most remain undiagnosed or dismissed as non-symptomatic. You can learn a lot about TCs from them. Google tarlovcystfoundation for them Good luck with it. Last edited by Curious; 05-20-2008 at 10:18 AM. Reason: edit required per guidlines |
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05-21-2008, 06:51 PM
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Hi Lillibet! Welocme to Neurotalk!
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. . LOVE DORRIE!! |
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Lillibet
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