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Old 06-19-2008, 09:27 PM #1
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Smile Welcome Julesw47
HELLO AND WELCOME TO NEUROTALK!!!
I copied your post from the RSD Forum over here so that more people would see you and get the opportunity to welcome you!!!

Please feel free to roam around the board and join in anywhere!!!
So happy you found us and hope to see you around the boards!!

Abbie




Jules
I am new to the forum and share all of your agony. I had my left foot crushed 8 years ago and have had 6 surgeries to fusion my foot. They didn't catch the RSD in time and is now full blown. I take topomax, lexapro, klonapin,dilaudid. I have an intrathecal pump with dilaudid and bupravaine that I get an hourly dose. It is implanted in the left side of my abdomen. I walk with a cane from so much pain. I just had surgery in March because a screw broke and a part of my foot was broke again. Now because every invasion causes RSD to worsen the allodynia is really bad and so is the burning. I feel terrible for Sarah because the worse think for RSD is immobility. You are suppose to do some kind of exercise to help your extremity from contracture and burning. I wish everyone the best and god bless. Julie
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Old 06-19-2008, 09:50 PM #2
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Hello Julie and Welcome to NeuroTalk. Glad you found us and I hope you join in anywhere. Everyone here is very helpful and friendly.

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Old 06-19-2008, 10:24 PM #3
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Hello Julie, I'm so sorry to hear about the pain that you've been through.

Welcome to NeuroTalk from me as well, and maybe we'll meet up somewhere around the board.

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Old 06-20-2008, 09:14 AM #4
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Hi, Julie! Welcome to NeuroTalk!
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Old 06-27-2008, 01:16 AM #5
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene
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Old 06-27-2008, 06:15 AM #6
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Hello and welcome to Neurotalk - you will meet many great people here!!

I am so sorry to hear that you too suffer from RSD/CRPS. I have RSD in my left leg and right arm - It started when I was 12 years old (I am now 13)

If you ever need anything please don't hesitate to ask - I am more than happy to help you in any way I possibly can.

Thanks and I'm looking forward to seeing you around the forum soon

Best wishes
Alison
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