It's great to have you here at NT!
I'm sorry to hear that your symptoms are getting worse.
Check out the TOS forum! You'll be amazed at how many people care and share in this. There's alot of good information also. Here's the shortcut link to get you there:

http://neurotalk.psychcentral.com/fo...aysprune=&f=24

I hope you can begin to get some answers soon!

Caring,
Rae

Hi, and welcome to NT ! ! !

Your cry is all too familiar to us. We do understand

Been there... no fun...

I wrote "51 TIPS FOR TOSERS" that has some good helpers in them.

http://neurotalk.psychcentral.com/sh...tips+TOSEr%27s

This was in "2008"

I've progressed very well in the last 2 years.

Hang in there. You'll find something here to help you for now. Hopefully, you wil find things to help you in the long term.

Nobody needs TOS. I think it's far from being understood by many in the medical community. You must become your own advocate for your own protection. Don't just jump into anything. Be careful...

It will not be an easy path to walk. We're here for you

Hello,

I had TOS caused my an extra set of ribs. It all started with a pin prick feeling in my right finger tips (the right side is the affected side) it then went to my fingers turning white and then my hand going fully tingly and the full hand turning white then it moved up my arm and it started getting weak when holding things or using it. My whole arm and hand starting tingling and getting that over worked feeling when I was doing nothing. It then started hurting but that might have been due to blood clots that were in my arm so that might not happen with just TOS. It took the doctors forever to figure out what was wrong with me they thought I had reynauds and I can't even remember now half the stuff they thought it wasn't until an angiogram that they saw what it was and I was in surgery two days later! I hope this helps!!!!

Hi I have T,O,S and I had Dr Togut and he left now I have no one my prim dr is doing my meds but now he is being real bad and I have to try to find a dr to help me and I have no one to talk to and I live in Scranton pa and I would like to find ppl to talk to and try to find a dr to help me it is hard all I want to do is cry because no one nows the pain that anyone is going threw with this T,O,S plz anyout there talk to me and need help thank you