I wanted to introduce myself. I am new here but not to the pain of RSD. I was originally diagnosed with rsd in the earlt 1990's. It all started with a WC injury, and a horrible nightmare that followed. I originally hurt my knww crawling around on the floor filing at work. I was sent to a WalkIn clinic, who put me in an immobilizer and referred me to an orthopaedic. I saw one, who said I don't know what is wrong, go to PT it will settle down. I said no, called WC and asked for a 2nd opinion to find out what was wrong, well they took their time making an appointment and before I was able to keep the appointment they made I had DVT and the valves were destoryed in the lower part of leg. I ended up in the hospital for 15 days! All due to the wrong type of immobilizer. The pain started after this, all the muscles atrophied in my leg, I had foot drop, I had to learn how to walk all over again, and I had the WC nightmare to deal with that a lot of us know of not authorizing, cutting off checks, etc. What a nightmare. I took me 3 years to get SSDI. After several years I was one of the lucky ones.....the rsd went into remission for about 8 years, that is until last summer when it came roaring back, it has now spread into my hip and spine. I went back to work 8 years ago when it went into remission and now I am stuck working, whether I really an or not. Thank God for my primary care doctor, otherwise, I don't know what I would do. I now work for SSA in a sedentary job, so the chances of getting SSDI again are nil. I struggle everyday to stand, walk and sit, I come home every night and go to bed. The quality of my life has declined drastically, I used to enjoy shopping, antiquing and shooting weddings. Now it's all I can do to make it through the grocery store.

I have tried just about every medication over the years and had 4 years of PT and aqua therapy, tried acupuncture, TENS unit set me off, it was horrible, blocks. I'm not sure what I am going to do this time, the past year has been awful. I did see a Pain doc, he didn't want to listen to me when I told him I didn't want to try Lyrica because I had had a bad reaction to Neurontin, his respoonse was to call me when I decided I wanted to try it. Well I haven't called. One doctor I saw told me to do whatever it was last time that put it into remission, well if i knew what that was do you honestly think I would been there to see him. I wouldv'e been telling everyone how to get it into remission! It's bad when we know more than the doctors, which is what I am finding now. Thank God my primary isn't afraid to prescribe pain meds and knows enough to understand the difference between addiction and dependence!

I am looking forward to meeting more peopke with rsd and I am wondering if anyone else has experienced rsd going into remission then coming back worse than before?

Hi Sherimac! Welcome to Neurotalk!! Glad to have you here!

Hello and welcome to NeuroTalk.

I'm so sorry to read about the pain that you've been through, and I hope you'll be able to get answers to your questions, here on the boards.

We do have a great RSD Forum with many sympathetic members with issues similar to your own. Here's the link incase you haven't found it yet.: http://neurotalk.psychcentral.com/forum21.html

Hi, Sheri! Welcome to NeuroTalk!

Hello Sherri and Welcome to NeuroTalk. Sorry to hear of the rough time you are having. I don't know much about RSD, but I see our Koala has given you some directions.
Hope you take a look around and join in anywhere.

Glad you found us.

Hi Sherimac and welcome to NeuroTalk!!