NeuroTalk Support Groups - I'll say hello here as well! :)

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- - I'll say hello here as well! :) (https://www.neurotalk.org/new-member-introductions/50372-ill-hello.html)

I'm very happy to meet you, but sorry for the reason that you're here. I don't know a lot about MS, but I know it's not a picnic. It seems a little strange to me that they would subscribe Neurontin and Amatriptylene for the burning sensation in your mouth. I took both those drugs for some time for other reasons, and so I researched them both very closely. I never saw it mentioned that they could be used that way. But then again, I'm no doctor. I send you all my best wishes and luck!:)

I wonder if a certain flavor of hard candy would help with the burning??

Welcome to the MS fun times! Every day is a new day is what I say!

:Wave-Hello:

Quote:

Originally Posted by dmplaura (Post 327383)

I already said hello on the Multiple Sclerosis specific boards, but I'll chime in here.

I'm new here, but not new to the Internet, or trying to figure out the health issues that riddle me daily. I was dx'ed with MS in March of 2008, so fairly new. I had been suffering with symptoms of neurological nature for 2-3 prior to the MS dx.

Day to day, I suffer from various symptoms resulting from MS, however the big one for me is actually burning mouth syndrome. It's one that I hope to be able to control or figure out to a degree. Calming the burning will help immensely in being able to deal with the rest day to day!

Other than that, I'm a 31 year old woman from Canada. I have an excellent GP and neurologist, so I am lucky. I shoot Copaxone daily for MS, but I also take Neurontin and Amitriptyline currently for the burning mouth (do not seem to be working).

I'm an avid gamer. Gaming is great, takes my mind off the daily aches and pains, and keeps my mind and reaction times busy and working. I also love art, crafting, reading.

WOW! That is a new sx to me?
I have had MS for many years,but not heard of that one?
How awefull, I hope you find an answer and when you do please let us know.
When you say gaming, do mean gambling?
We are a bit upside down here in OZ. LOL!
Since I have been to Vegas, I have become fond of Texas Holdem.
Hugs,
Jenni

Quote:

Originally Posted by Idealist (Post 328114)

I've read a lot specifically about BMS (Burning Mouth Syndrome) and my neuro is very familiar with it.

At low doses, Neurontin and Amitriptyline have in some patients with BMS helped to rid them of the burning entirely. It's not helping in my case it seems!

Junie: I chew gum, and that relieves the pain a bit, but you can't have gum or candy in your mouth all day, you know? ;)

Ziggy: MMORPGs (Massive Multi player Online Role Playing Games) actually. Online games played with thousands of others. Imagine knights in shining armor, wizards casting spells and you have the type of game I play, and have played for 6 years :)

Burning Mouth Syndrome is uncommon in itself, and is even more so if you look at it with Multiple Sclerosis. 2 neuros I saw suspected brain stem lesion caused by the MS to be causing this. I do hope it eventually goes away, or I find relief from the pain of it!

Sorry, I was trying to help think of a way to help, guess my ideas are not always too bright...one of my flaws, trying to fix things??:confused:

Well, welcome baby...I love new babies!! You just come on over here and let Momma give you a big ole hug!! Now, you watch out fer that JMiller and you'll be fine!! lol

Don't you be worrin bout that ole MS...you'll be jest fine...its a messy ole thing but we all get through it with each other's help.:hug:

About that burning mouth...have you tried some of the gum numbing products? Just a thought...

Quote:

Originally Posted by Junie (Post 328586)

Sorry, I was trying to help think of a way to help, guess my ideas are not always too bright...one of my flaws, trying to fix things??:confused:

It actually is an excellent idea Junie. It does help! Don't sell yourself short ;)

Momma, Laura needs a big ole hug this week! :hug:

Hello dmplaura and Welcome to NeuroTalk. Glad to see you are making your way around the boards and joining in. Please continue to make yourself at home.

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