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Old 03-03-2009, 03:48 PM #11
Sheriberi Sheriberi is offline
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Hi, My name is Sheri, I am a wife and the mother of 4. I was diagnosed with RSD in 2003 after falling and tearing the meniscus in my right knee. I am being treated with ketamine infusions every three months - 200 mg for 4 hours for 2 days. I first went into the hospital in Sept. of 2004 for 4 days then a few months later had a booster. I felt great!!! Until I was stopped at a stop sign and was hit in the rear by a woman going 40 mph. That put me into a tail spin!! My RSD has spread from my leg to the other and my traps go into spasms - really bad. of course nothing shows up on MRIs because the RSD has spread to my upper body as well. The infusions have been helpful, they last about 6 8 weeks. My Dr. has never mentioned any type of oral ketamine. Instead my pain specialist has me on oxycontin and percocet, which I take when I am really bad, which seems to be a lot lately. Oh and get this one, after 4 years my insurance company decided that ketamine infusions are experimental and will no longer be paying for them. I'm glad I found this forum with people who can understand the pain, frustration, depression of this debilitating condition. Thank you all.
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Old 03-03-2009, 09:45 PM #12
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azoyizes azoyizes is offline
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Hi bygone, and welcome to NeuroTalk! This is such a great place to hang out with lots of friendly people.
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Old 03-03-2009, 09:51 PM #13
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Quote:
Originally Posted by Sheriberi View Post
Hi, My name is Sheri, I am a wife and the mother of 4. I was diagnosed with RSD in 2003 after falling and tearing the meniscus in my right knee. I am being treated with ketamine infusions every three months - 200 mg for 4 hours for 2 days. I first went into the hospital in Sept. of 2004 for 4 days then a few months later had a booster. I felt great!!! Until I was stopped at a stop sign and was hit in the rear by a woman going 40 mph. That put me into a tail spin!! My RSD has spread from my leg to the other and my traps go into spasms - really bad. of course nothing shows up on MRIs because the RSD has spread to my upper body as well. The infusions have been helpful, they last about 6 8 weeks. My Dr. has never mentioned any type of oral ketamine. Instead my pain specialist has me on oxycontin and percocet, which I take when I am really bad, which seems to be a lot lately. Oh and get this one, after 4 years my insurance company decided that ketamine infusions are experimental and will no longer be paying for them. I'm glad I found this forum with people who can understand the pain, frustration, depression of this debilitating condition. Thank you all.


Hi Sheri, and welcome to NeuroTalk! There are lots of helpful forums with many friendly people here.

Below is a link to the RSD forum to help get you started.

http://neurotalk.psychcentral.com/forum21.html
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