New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 10-17-2008, 08:51 AM #1
concernedwife concernedwife is offline
New Member
 
Join Date: Oct 2008
Posts: 5
15 yr Member
concernedwife concernedwife is offline
New Member
 
Join Date: Oct 2008
Posts: 5
15 yr Member
Default Tarlov Cyst Back spasms & cost of surgery

Hello, I am new to this community and am very worried about my husband. He has been treated for low back pain since April 2008...two months with chiropractor and little relief and now three months with orthopedic doctor. Ortho doctor was treating for lumbar pain until I suggested my husband use a donut cushion to sit on. He ihas been in excrusiating pain for months which has continuously worsened that he can not sit or stand for more than a couple of minutes. Two weeks ago I suggeste ortho doctor order MRI which now we know my husband has a very large Tarlov cyst (6.7 cm long and 3.6cm in diameter) in his sacrum. The pain has intensified and now he is having spasms in his mid back whenever he tried to walk or get up from a sitting position. We have been referred to a neurosurgeon who has us on a wait list to see him in mid November. The neurosurgeon did look at my husbands MRI at our insistance and has now ordered an MRI for the lumbar spine to see if the cyst is moving upward. We are waiting for that result today. Our problem too like so many Americans is we have no insurance. Does anyone has these symptoms of back spasms and anyone know how much surgury cost for removal of the Tarlov cyst? I am sick with worry that this is not going to get better and finding help seems to be everyones problem. My husband is 63 yrs old and has always been in great health. This is causing extreme depression and worry since he is not able to work and runs his own business. I am disabled from a car accident and have not worked for years so I am not much help other than supporting him emotionally and trying to do research on Tarlov cyst. We live in Miami if anyone knows of a doctor that deals with this type of cyst. We have so many people praying for my husband and right now that is all we have to get us through. Thanks for any info you all might have!
concernedwife is offline   Reply With QuoteReply With Quote

advertisement
Old 10-17-2008, 10:51 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Hi and welcome to NeuroTalk! I'm so sorry for all your hubby's health problems but so glad you came to this site. I've posted the link to the forum where Tarlov Cyst has a subforum. Hopefully someone there can reccomend a doctor in the Miami area that can help. I'll be praying for you!


http://neurotalk.psychcentral.com/forum87.html

http://neurotalk.psychcentral.com/forum73.html


__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Old 10-17-2008, 01:44 PM #3
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

Hello and welcome to Neuro Talk, sorry why you found us, but following those links ask all the questions you want and get to know folks, they are a kindly lot, lol and really wonderful, again welcome to NT
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
Old 10-18-2008, 11:51 AM #4
FranksAngel's Avatar
FranksAngel FranksAngel is offline
Senior Member
 
Join Date: May 2008
Location: NW of the Windy City
Posts: 1,219
15 yr Member
FranksAngel FranksAngel is offline
Senior Member
FranksAngel's Avatar
 
Join Date: May 2008
Location: NW of the Windy City
Posts: 1,219
15 yr Member
Default

hello concerned ... and welcome to NT ... this place is amazing and has lots of friendly and supportive people ... post your questions where you feel most comfortable ... i am sure someone will have an answer ... again ...
__________________

.

.
chicago,il
.
FranksAngel is offline   Reply With QuoteReply With Quote
Old 10-19-2008, 06:25 AM #5
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart

Hello and Welcome to Neurotalk - you will meet many great and supportive people here and hopefully get some answers that you and your husband need!

I'm so sorry to hear about everything that you and your husband have and are currently going through .

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I can!!

Take care of yourself and I look forward to seeing you around the Forum real soon!!

Alison.
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
Old 10-19-2008, 09:34 PM #6
dorrie's Avatar
dorrie dorrie is offline
Senior Member
 
Join Date: Apr 2007
Posts: 1,900
15 yr Member
dorrie dorrie is offline
Senior Member
dorrie's Avatar
 
Join Date: Apr 2007
Posts: 1,900
15 yr Member
Default

Welcome to Neurotalk!!!
__________________

.

.


LOVE DORRIE!!
dorrie is offline   Reply With QuoteReply With Quote
Old 10-23-2008, 06:54 PM #7
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Default


Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Old 10-25-2008, 09:18 AM #8
Bannet's Avatar
Bannet Bannet is offline
Senior Member
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Bannet Bannet is offline
Senior Member
Bannet's Avatar
 
Join Date: Jan 2008
Location: Michigan
Posts: 1,125
15 yr Member
Default

I am so sorry for being late in welcoming you to NeuroTalk.

A warm welcome to you.

__________________

.


Roadtrip Wannabe
Bannet is offline   Reply With QuoteReply With Quote
Old 11-14-2008, 12:17 PM #9
Nigel Reynolds Nigel Reynolds is offline
New Member
 
Join Date: Nov 2008
Posts: 1
15 yr Member
Nigel Reynolds Nigel Reynolds is offline
New Member
 
Join Date: Nov 2008
Posts: 1
15 yr Member
Default

Quote:
Originally Posted by concernedwife View Post
Hello, I am new to this community and am very worried about my husband. He has been treated for low back pain since April 2008...two months with chiropractor and little relief and now three months with orthopedic doctor. Ortho doctor was treating for lumbar pain until I suggested my husband use a donut cushion to sit on. He ihas been in excrusiating pain for months which has continuously worsened that he can not sit or stand for more than a couple of minutes. Two weeks ago I suggeste ortho doctor order MRI which now we know my husband has a very large Tarlov cyst (6.7 cm long and 3.6cm in diameter) in his sacrum. The pain has intensified and now he is having spasms in his mid back whenever he tried to walk or get up from a sitting position. We have been referred to a neurosurgeon who has us on a wait list to see him in mid November. The neurosurgeon did look at my husbands MRI at our insistance and has now ordered an MRI for the lumbar spine to see if the cyst is moving upward. We are waiting for that result today. Our problem too like so many Americans is we have no insurance. Does anyone has these symptoms of back spasms and anyone know how much surgury cost for removal of the Tarlov cyst? I am sick with worry that this is not going to get better and finding help seems to be everyones problem. My husband is 63 yrs old and has always been in great health. This is causing extreme depression and worry since he is not able to work and runs his own business. I am disabled from a car accident and have not worked for years so I am not much help other than supporting him emotionally and trying to do research on Tarlov cyst. We live in Miami if anyone knows of a doctor that deals with this type of cyst. We have so many people praying for my husband and right now that is all we have to get us through. Thanks for any info you all might have!

Hi I am really new, emailing from London, England
I have suffered for years with back spams ( I am 57)
But in my 30's they came every 6 months. Now they are two a month. They bend me over like a Marx brother. I have just been diagnosed with a tarlov. Your husband's spams appear to confirm my suspicion that the cyst has caused the spasm. i can cope with the pain - its the lack of mobility which is restricting my activities. The spasms last a week and walking in the first few days is awkward and painful as well as looking comical.
When all tests are done I will let you know what my doctor plans to do to deal with the spasms.....if anything.
regards
Nigel Reynolds is offline   Reply With QuoteReply With Quote
Old 11-29-2008, 01:18 PM #10
concernedwife concernedwife is offline
New Member
 
Join Date: Oct 2008
Posts: 5
15 yr Member
concernedwife concernedwife is offline
New Member
 
Join Date: Oct 2008
Posts: 5
15 yr Member
Default Back spasms

Hi Nigel, Thanks for your reply. I am happy to say that my husbands back spasms have stopped. In addition to the 6.7cm cyst pushing on nerves in the sacral spione he now believes the spasms were casued by the way he was laying in bed on his abdomen all the time because of the back pain. He was laying with his arms above the shoulders and when he would walk or stand with arms at side the spasms would start. He is also now taking a new medication called Lyrica CV which is for Fibromyalgia mainly but was prescribed to help with the muscle spasms and pain. He is taking it three times a day along with two other pain pills and a muscle relaxant. He is still having so much sacral pain from the cyst that he can no longer work. He mostly lays down all day or briefly sits in a chair for his meals. He has has two MRI's, a bone scan, a Cat scan and just last week a myelogram. All have confirmed it is a tarlov cyst causing the pain in sacrum. We are still looiking for a doctor to do the surgery to remove the tarlov cyst. We live in Miami and have found one doctor but he has only performed one tarlov surgery and that was twenty years ago. We have three calls to other doctors, Dr. Long, Dr. Henderson and Dr. Feigenbaum hoping to hear soon. Good luck with your condition and keep me posted.

Betty


Quote:
Originally Posted by Nigel Reynolds View Post
Hi I am really new, emailing from London, England
I have suffered for years with back spams ( I am 57)
But in my 30's they came every 6 months. Now they are two a month. They bend me over like a Marx brother. I have just been diagnosed with a tarlov. Your husband's spams appear to confirm my suspicion that the cyst has caused the spasm. i can cope with the pain - its the lack of mobility which is restricting my activities. The spasms last a week and walking in the first few days is awkward and painful as well as looking comical.
When all tests are done I will let you know what my doctor plans to do to deal with the spasms.....if anything.
regards
concernedwife is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
new Tarlov Cyst diagnosis nanarose New Member Introductions 12 05-25-2010 06:50 PM
Tarlov Cyst Verdala New Member Introductions 1 10-20-2007 01:36 PM
tarlov cyst KJCA New Member Introductions 2 09-21-2007 12:48 AM
new Tarlov Cyst diagnosis nanarose Tarlov Cyst 1 08-22-2007 08:50 PM
Tarlov cyst Ablation GJZH Tarlov Cyst 0 10-12-2006 11:37 AM


All times are GMT -5. The time now is 01:06 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.