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Old 10-20-2008, 06:02 PM #1
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Hi,

I'm trying to find if there are any cures for Erythromyalgia, or other information.

I'm 20 years old and i've had it since i was 13. I know it's nerves near my spine and i was told i can get injections in the nerves to hope that ill get a perminant block... but i already get injections into my neck for cronic pain so i dont really want any more injections.

My Erythromyalgia is pretty bad.. i cant even go into the sun with out feeling my blood is boiling. Lights also cause erythromyalgia flare ups for me or standing still for more then 5 mins.

If some one is reading this and doesnt know the sysptoms it's: tingling in my calfs and when i look at them they are light purple with light red splotches.. then my feet get very red, very hot and my blood veins stick out. it is painful it burns and is very uncomfortable. i find that putting them in cold water helps. My hands are the same but they dont get splotchy. .. one time half of my foot was dark blue and freezing while the other other half was red and burning.. nuts eh? try telling that to your doctor. it was all on the same foot.
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Old 10-21-2008, 07:18 AM #2
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Hello and Welcome to Neurotalk!! You will meet many great and supportive people here who I am sure will be more than happy to help you in anyway they possibly can!!

Unfortunately I don't know much about Erythromyalgia but just wanted to say I am so very sorry to hear that you suffer from it and that I hope you feel better real soon

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can!!

Take care and I look forward to seeing you around the forum soon!!

Alison.
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Old 10-21-2008, 07:41 AM #3
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hello downfall, welocme to Neuro Talk, like Ali I am also not sure, but here is a link that may get you in the right direction as far as forums

http://neurotalk.psychcentral.com/forum105.html

this is the occipital and other craniumsforums. but they talk about nerve blocks and perhaps posting the question there you may get better directions as to posting or and answer, again welcome to NT and hope you get to feeling beeter real soon
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Old 10-21-2008, 11:22 AM #4
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Hi downfall24 and welcome to NeuroTalk! I hope you can get some answers to your questions. There are plenty of very caring and supportive people here....I'm glad you joined us!!



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Old 10-21-2008, 02:17 PM #5
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Hello and Welcome to NeuroTalk!

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Old 10-23-2008, 06:44 PM #6
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welcome to neurotalk ... i see that you've already been given great places to start ... i hope you find answers ...
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Old 10-23-2008, 06:58 PM #7
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

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Old 10-25-2008, 10:02 PM #8
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hey no worries ali there are alot more worse things out there then Erythromyalgia but thx tho =)
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