[beenthere]

Hi I'm new here and just wanted to know if anyone else has been diagnosed with this disorder? What kind of treatment worked for you?
Thanks for your help.

[Jomar]

What kind of pain or symptoms are you having?
Do you agree with that diagnosis?

basic info on your diagnosis-
[Introduction: Undifferentiated Somatoform disorder

A condition where a person suffers from persistent physical complaints that are not due to a medical condition or are more severe than an existing medical condition is likely to cause. The physical complaint must exist for at least six month. The physical symptoms tend to occur or become worse when the person is under stress. Depression, stress and various psychological reasons are thought to be possible causes. Often, the symptoms interfere with a person's ability to carry out day-to-day functions. Common physical symptoms include pain, fatigue and gastrointestinal problems. Also called somatization syndrome. ]
http://www.wrongdiagnosis.com/u/undi...rder/intro.htm

many more info links about it-
http://www.google.com/search?q=Undif...ient=firefox-a

[GladysD]

What types of medical tests did you go through for your doctors to reach this conclusion?

I don't have this disorder, but my condition in days of old used to be referred to as hysteria and a type of conversion disorder aka somatization....

[FranksAngel]

welcome to neurotalk ... as you can see, there are lots of friendly and helpful people here ... i hope you find answers soon

[Kitty]

Hello and welcome to NeuroTalk!

[Bannet]

Hi and Welcome to NeuroTalk. Hope you get some answers soon. Glad you found us.

[beenthere]

A Ph.D. ABPN who does this kind of testing. The doctor visited with me, then I had to complete a 100 questionaire rated 1-5 highest being most of the time, 1 being not at all...then he also had my daughter complete one too (her opinion of how I do daily) and then I completed a four-hour testing of mutiple tests for memory, concentration, focus, thought processing etc. It took 3 months for them to get the results completed so a determination could be made. I believe it is very thorough.

[Jomar]

Burning pain??.....some questions for you..

Do you have any hyper sensitive skin, to touch, fabric or breezes?
Has RSD /CRPS been looked into??
I know fibro includes some skin sensitivities , but RSD/CRPS can be extreme with sensitivities & burning feelings also skin colors and texture changes and swelling.
RSD/CRPS pain is often out of proportion to any injury that might have preceded it.
Often patients are told it's in your head by drs that do not know much about it.
I don't know if any of those fit for you - but we have a RSD forum here if you'd like to learn more about it-
http://neurotalk.psychcentral.com/forum21.html

[beenthere]

Originally Posted by Jo55

What kind of pain or symptoms are you having?
Do you agree with that diagnosis?

basic info on your diagnosis-
[Introduction: Undifferentiated Somatoform disorder

A condition where a person suffers from persistent physical complaints that are not due to a medical condition or are more severe than an existing medical condition is likely to cause. The physical complaint must exist for at least six month. The physical symptoms tend to occur or become worse when the person is under stress. Depression, stress and various psychological reasons are thought to be possible causes. Often, the symptoms interfere with a person's ability to carry out day-to-day functions. Common physical symptoms include pain, fatigue and gastrointestinal problems. Also called somatization syndrome. ]
http://www.wrongdiagnosis.com/u/undi...rder/intro.htm

many more info links about it-
http://www.google.com/search?q=Undif...ient=firefox-a

I have Sjogren's Syndrome and Fibromyalgia and I'm pain meds for nerve pain so I don't think I'm "thinking up the pain", it is for real, but when I get stressed it does get worse and I do have problems doing day-to-day functions...I spend a lot of time lying in and out of bed to calm my body down so I can continue throughout my day. The pain isn't so bad while I'm riding in a car it's the moving around, getting in and out and up and down and walking, bending, lifting, just moving. And I think it can be contributed to my small nerves, I also have burning pain. I've also been diagnosed with Schiezoaffective Disorder & Cognitive Disorder - Subtle, so you tell me. Thanks for your help. Beenthere

[Jaspar]

Originally Posted by beenthere

I have Sjogren's Syndrome and Fibromyalgia and I'm pain meds for nerve pain so I don't think I'm "thinking up the pain", it is for real, but when I get stressed it does get worse and I do have problems doing day-to-day functions...I also have burning pain. I've also been diagnosed with Schizoaffective Disorder & Cognitive Disorder - Subtle, so you tell me. Thanks for your help. Beenthere

It is easy for doctors to say pain is a mental illness when a mental illness is diagnosed on not knowing the medical cause. Just because they don't know the medical cause does not mean it is not medical.

There are many different things that can be causing your symptoms. You may have more than one problem and your troubles may be a combination of them.

The stress from an earlier condition could cause a cascade of autimmune problems. Pain begets more pain.

Before they diagnose you with this they should have run extensive testing on you. Have you checked yourself for gluten sensitivity? See www.enterolab.com What about all your hormone levels? Have they given you physical therapy? Checked nutritional status (vitamins and such?)

You might wish to investigate http://www.lef.org and http://www.endfatigue.com/

Also, see: http://www.psychosomaticmedicine.org...nt/34/1/69.pdf

Also, geared towards parents but useful, http://itsnotmental.blogspot.com/ (written by a parent whose child had symptoms similar to yours and was also diagnosed (misdiagnosed?) schizoaffective.)

That is not to say you do not have schizoaffective on top of everything else. I am just saying that diagnosis may have been based on the unaddressed medical problems that are real not a figment of your mental status.