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Old 11-26-2008, 08:49 PM #1
cemert cemert is offline
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Default New here...tics or seizures???

Hello. Thank you for taking the time to read my post.

I will get to the point. My son is 2 1/2 and has some medical problems such as GERD, speech delay and is currently getting feeding therapy for food aversion.

We have noticed a increase in "spells" which, to be honest, I cant remember when they started because of all the other testing we have been doing. Anyway, they have become much more noticable and frequent. I have noticed that they seem to increase when he is excited or sleepy.

I will describe a "spell" as: In the middle of an activity, and it could be bathing, eating, playing, basically anytime, he will flex his whole body, grimace his face, bulge his eyes, and shake his body almost like a shiver. If it is intense he will drop his chin to his chest and stretch his left arm back and his right arm will draw in. Sometimes during this spell which lasts 5-10 seconds he will repeatly open and close his fists. He holds his breath and breaths afterwards. Sometimes he will have a spell, seem to relax and then go right back into it. I call his name to see if I can interupt him and sometimes it works, but he often yells afterwards like Ive startled him or interupted him.

He had a 30min EEG which demonstrated sharp wave activity at C3 and the impression was "a very slightly abnormal EEG". He had the 6 hour study today and being it is a long weekend, I will not have any results back for 1-2 weeks.

Anyway I know this is a long post, but I was just wondering if anyone has had similar experiences with "spells" like my son.

Thanks again for any input.
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Old 11-27-2008, 01:58 AM #2
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Cemert, I wanted to welcome you to Neuro Talk.

I can't help you much with whats going on with your precious son. There are some pretty great folks here and I know someone should chime in a help with some info. I'm so very sorry for what you are having to deal with. I hope your not alone going through all you are challenged with.

I just wanted to welcome you and wish you my best!!!

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Old 11-27-2008, 10:56 AM #3
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try posting in the gluten sens. forum.....good luck
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Old 11-27-2008, 11:31 AM #4
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It honestly does not sound like a tic. I know doctors think that anything that does not show up definitively as a seizure on an EEG is not something to take seriously... but that seems idiotic. Even "psychogenic" seizures are REAL entities.

I agree with the former response about looking into gluten intolerance.

I hope the 6 hour results will be more revealing to you one way or another.
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Old 11-27-2008, 10:44 PM #5
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

You find at this epilepsy link a good number of people there to assist you. There is even a tread with descriptions of different spells.

http://neurotalk.psychcentral.com/forum11.html

Again welcome, looking forward to seeing you around.

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Old 11-28-2008, 07:43 AM #6
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Hello and welcome to NeuroTalk! I'm so sorry that your son is having to go through all this.....especially at such a young age. I hope that you get some answers soon.


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Old 11-29-2008, 09:18 PM #7
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Hello and welcome to Neuro Talk, sorry about your sons condition, try the seizure forum don't hesitate to ask questions folks here are real helpful. I was a sole parent of two boys and my eldest had severe activity on both hemispheres and was able to be maintained with meds, it can be a pain not gonna lie, getting the meds correct is the hardest issue, but first lets wait to see what doc says. Don't over worry before the doc tells you what to worry about. Wont help you with stress, I can offer some encouragement for such severe seizures. my son has grown out of them, this was a surprise and a gift. again welcome to NT, don't hesitate to mess me if I can help
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Old 11-30-2008, 05:18 PM #8
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hello and welcome to nt ... i know that not having answers can be frustrating ... but when it involves our children its intolerable ... we parents what answers "last week" ... i hope you get answers soon... again ...
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Old 10-10-2010, 02:10 PM #9
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Default My daughter

When I read your post, I was instantly struck that everything you were saying described my daughter's behavior to a T. We are just beginning to try to get a diagnosis. She has had a one hour EEG that turned out negative, but I know she did not repeat the behavior during the EEG. This all started about 8 months ago, and it has gradually gotten worse and worse. Sometimes it happens as often as 40 times in a half hour period, sometimes it doesn't happen at all or just a couple times. I cannot find any information on the internet. Have you gotten a diagnosis? I'd be really interested to hear mroe from you. Thanks.
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