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Old 01-04-2009, 01:14 PM #1
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I have almost constant nerve pain in the nerve above one eye- subraorbital neuralgia. I've tried many medications the past 8 years but nothing seems to help very long. Topamax seemed to work for a few months but then when I had to start increasing the dose, it not only did nothing for the pain but the side effects at the higher dose was unbearable. Side effects of anti seizure drugs are problem for me as I start increasing the dose.

I'm not taking Neurontin and up to 3000mg. So far it is not helping. I just started Nortriptlyne a few days ago but the antidepressants cause my heart to race and then the nerve pain gets worse when that happens. My doctor is considering adding a beta blocker to regulate my irregular pulse.

I've tried several topical pain relievers and had various things done to the nerve by the pain doctor such as botox, pulsed radio frequency, and an implanted trial stimulator over the nerve. Nothing relieved the pain. I take Percoset but it does not completely get rid of the pain but usually helps.


I had shingles in the nerve several years ago but did not go to the doctor and get the antiviral medication until about a week later. Does anyone have this type of neuralgia and has helped them?
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Old 01-04-2009, 02:10 PM #2
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Welcome to NeuroTalk, Pam! This is a great place to come and visit, or stay awhile. You will meet some very nice and caring people on these forums.
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Old 01-04-2009, 03:07 PM #3
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Howdy Pam.

Just wanted to stop by, say hi and welcome you to our little corner of the universe.

Hope you get some answers. We also have a social chat. We like to share info and laugh.

Take care,

Melody
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Old 01-04-2009, 08:12 PM #4
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Hi! Welcome to Neurotalk!!!
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Old 01-04-2009, 11:39 PM #5
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hello and welcome to neurotalk ... there are lots of friendly and supportive people here ... i hope to see you posting in some of the different forums soon ... here is a link to the neuralgia forum ... i hope this helps you alittle
http://neurotalk.psychcentral.com/forum105.html ... and again ...
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Old 01-05-2009, 01:27 AM #6
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Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene
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Old 01-05-2009, 06:03 AM #7
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Hey there, Pam and welcome to NeuroTalk!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Old 01-05-2009, 09:05 AM #8
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Howdy Pam and welcome to a cool place neuro talk is filled with some really helpful kind and fun people, do not hesitate to post you questions concerns or worries or humor folks here are great, again welcome to NT
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