[FlyingDutchWoman]

That would be a clear title for my introduction
I am Lilian, living in Holland with son and some animals and just got a diagnosis small fiber neuropathy. I am waiting for the results of the very last inquiries, for perhaps giving me a cause for my sfn, but the doctor honoustly said to me today, that she hasn't have much confidence that we will find a cause. So in about six weeks it will be an idiopathic sfn I guess.
Last few weeks I searched the internet for documentation about sfn, which was a complete disaster in Dutch; just sfn as complication of Sarcoïdosis is listed and one or two persons somewhere tell something about it on a discussionboard, but furtheron there is absolutely nothing to find about it. Not even a list of symptoms that is usefull to show to interested friends
So I had to look for it in English... which was heavy because my English is not very well and ofcourse medical text is even more difficult to read. But an online dictionary is helping me also with writing this text... So excuse me for making mistakes, the good thing is that your Dutch must be much worser than my English!

Here in Holland sfn is very unknown, also with doctors unfortunately. Accidentally my hospital is 'the' specialized hospital in Holland for sfn, it's the Academic Hospital in Maastricht, so for Holland I am at the right place. Because it's an academic hospital they do studies, also for sfn, so one day I may be helpfull to this. Till that time it's waiting for a treatment and reading about it in English I am afraid. One good thing is that I practice my English very well

[weegot5kiz]

Hallo , hoe gaat het ermee, and welcome to Neuro Talk, here is a link to a forum you can post more direct questions concerning Neuropathy http://neurotalk.psychcentral.com/forum20.html

do not hesitate to ask questions, people here are wonderful and helpful

No I do not speak Dutch was just trying to welcome you in your native tongue, this way you do not type a long reply in dutch and i say huh?
again welcome to NT

[FlyingDutchWoman]

Hahaha! Very good! Do you also know what you just typed?
I read the thread for new members very well so I put down my introduction text there as well. Questions and so about neuropathy I will put there ofcourse.

And now I am going to sleep because it's almost night here (don't have a fever or so but just cannot find a sleeping emo)

[FranksAngel]

hello and welcome to neurotalk .... there are lots of friendly and supportive people here ... jump right in and start posting where you feel comfortable ... i hope to see you posting soon ... again

[azoyizes]

Hi FDW, and welcome to NeuroTalk! This is a great place to hang out, and there are a lot of very nice and caring people here.

I think you did a great job, typing your post in English.

[weegot5kiz]

yes i type hello how are you? if i am correct

[JustWeave]

Welcome FlyingDutchWoman. I spent two wonderful weeks in the Netherlands during the summer of 1984. My parents and I stayed with someone we met a year or two earlier. Maastricht sounds familiar but I don't know why. I hope you can find the answers to your health questions soon. For lots of people here it has taken many years to find the answers we were looking for.

[FlyingDutchWoman]

Originally Posted by weegot5kiz

yes i type hello how are you? if i am correct

Absolutely correct

[FlyingDutchWoman]

Maryann, thanx for the compliment
Weaveherr: nice that you have been in Holland, although it's some years ago. Do you know what you visited or in which city you have been?

[DM]

Hello FDW and Welcome to NeuroTalk. Really glad you found us and hope you take a look around and make yourself at home. We have a town in our state that has an annual Dutch Days celebration and they have a working windmill that was constructed by actual workers that came over here from Holland. This is a town reaped w/so much Dutch heritage. One of my Grandmother's was Dutch, but I never knew her.

Anyway~ welcome!!!!!!!!!!!