That would be a clear title for my introduction
I am Lilian, living in Holland with son and some animals and just got a diagnosis small fiber neuropathy. I am waiting for the results of the very last inquiries, for perhaps giving me a cause for my sfn, but the doctor honoustly said to me today, that she hasn't have much confidence that we will find a cause. So in about six weeks it will be an idiopathic sfn I guess.
Last few weeks I searched the internet for documentation about sfn, which was a complete disaster in Dutch; just sfn as complication of Sarcoïdosis is listed and one or two persons somewhere tell something about it on a discussionboard, but furtheron there is absolutely nothing to find about it. Not even a list of symptoms that is usefull to show to interested friends
So I had to look for it in English... which was heavy because my English is not very well and ofcourse medical text is even more difficult to read. But an online dictionary is helping me also with writing this text... So excuse me for making mistakes, the good thing is that your Dutch must be much worser than my English!

Here in Holland sfn is very unknown, also with doctors unfortunately. Accidentally my hospital is 'the' specialized hospital in Holland for sfn, it's the Academic Hospital in Maastricht, so for Holland I am at the right place. Because it's an academic hospital they do studies, also for sfn, so one day I may be helpfull to this. Till that time it's waiting for a treatment and reading about it in English I am afraid. One good thing is that I practice my English very well

Hallo , hoe gaat het ermee, and welcome to Neuro Talk, here is a link to a forum you can post more direct questions concerning Neuropathy http://neurotalk.psychcentral.com/forum20.html

do not hesitate to ask questions, people here are wonderful and helpful

No I do not speak Dutch was just trying to welcome you in your native tongue, this way you do not type a long reply in dutch and i say huh?
again welcome to NT

Hahaha! Very good! Do you also know what you just typed?
I read the thread for new members very well so I put down my introduction text there as well. Questions and so about neuropathy I will put there ofcourse.

And now I am going to sleep because it's almost night here (don't have a fever or so but just cannot find a sleeping emo)

hello and welcome to neurotalk .... there are lots of friendly and supportive people here ... jump right in and start posting where you feel comfortable ... i hope to see you posting soon ... again

yes i type hello how are you? if i am correct

Welcome FlyingDutchWoman. I spent two wonderful weeks in the Netherlands during the summer of 1984. My parents and I stayed with someone we met a year or two earlier. Maastricht sounds familiar but I don't know why. I hope you can find the answers to your health questions soon. For lots of people here it has taken many years to find the answers we were looking for.

Absolutely correct

Hi FDW, and welcome to NeuroTalk! This is a great place to hang out, and there are a lot of very nice and caring people here.

I think you did a great job, typing your post in English.

Hello and Welcome to Neurotalk - you will meet many great people here who I am sure will be more than happy to help you in anyway they possibly can!!

I'm sorry to hear about everything that you are currently going through and really hope you get some answers real soon!!

If you need anything, please don't hesitate to ask - I am more than happy to help you in anyway I possibly can!!

Take care and I look forward to seeing you around the forum more real soon!!

Alison.

You're from the UK! Hi neighbour Well, you are also not lucky to have so much things when you are only 13! My first doctor I visited about my paintroubles, it was a rheumatologist, he said to me after a few inquiries that I have hypermobility syndrome. I have to deal with it and (don't know exactly how to translate) get used to some pain because that was normal with this syndrome. He gave me a recipe for Tramadol, which I had to use my whole life I didn't believe this diagnosis and the main reason was, that I had most troubles in my hands and my hands were just the less hypermobile. I asked for a second opinion and visited the best rheumatologist here in the south, which I already knew by my girlfriend, who has Fibromyalgia and CFS. One of the first things this doctor said was, I don't know what your problem is yet but one thing is sure, it is NOT Hypermobility Syndrome!
So I know a little about some of your troubles. Are you still visiting school or are you learning at home or something? Must be hard for you to see other people of your age, doing all the things that they like and you cannot join them. Do they have some understanding about your situation? I hope so for you