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Old 02-08-2009, 06:06 AM #1
JessAnne JessAnne is offline
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Hi everyone,
I just wanted to introduce myself. My name is Jess. The reason I have joined this site is that my mother passed away last Sunday night of stiff person's syndrome. As this is such a rare disorder, I am curious to find out as much as possible about it.
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Old 02-08-2009, 10:19 AM #2
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Hello JessAnne

our deepest sympathy on your mom's passing.

I dont know anything about the syndrome but have heard mention of it before.

I hope you find the answers you are seeking here, as well as the support and care you need at such a sad time for you.

let us know if you need any help navigating the forums
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Old 02-08-2009, 10:23 AM #3
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Hi Jess, and welcome to NeuroTalk! This is such a great place to hang out, with loads of friendly and helpful people.

I'm so sorry about your mom. I know how very hard it is to lose your mother.
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Old 02-08-2009, 03:36 PM #4
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Quote:
Originally Posted by JessAnne View Post
Hi everyone,
I just wanted to introduce myself. My name is Jess. The reason I have joined this site is that my mother passed away last Sunday night of stiff person's syndrome. As this is such a rare disorder, I am curious to find out as much as possible about it.
Hello JessAnne:

Welcome to Neurotalks.

I just looked up Stiff Person's Syndrome aka Stiff Man's Syndrome. I found it in Wikipedia.

Sounds like it's related to dystonia.

Very rare and I can't imagine what you have been through.

Please know that your mom is now at peace.

Please accept my sincere condolences.

Keep poking around this website. Lots of friendly folk here.

Again, welcome to Neurotalks.

Melody
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Old 02-08-2009, 05:04 PM #5
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welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ... again ...
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Old 02-11-2009, 02:11 AM #6
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JessAnne,

Hello and welcome to NeuroTalk. It is great to see you have come to be with our hugh and loving family. There is a great group here to assist in how they can. I am so sorry to hear of you lost. My thoughts and prayers are with you.

Looking forward to seeing you around.

Darlene
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