[occ14mos]

hi, i'm brand new here and not really sure of how to work anything. I suffer w/ occipital neuralgia for 14 months now as my name suggests. I just started exploring the internet the last 2 days and found this site. I'm hoping to meet others that have ON. I had an accident which involved head trauma and neck (whiplash) injuries. I already read some stuff and boy can i relate.have had nerve blocks and am currently doing accupuncture. i seem to have this thing big time and have huge bouts of pain, i rarely don't have a headache and am starting to wonder if i will have this forever and am thinking about pushing for further action any help would be appreciated

[FranksAngel]

welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ... i see you've already found the occipital neuralgia forum ... a really good place to start ... be sure to check out other sites that are of interest to you ... again ...

[azoyizes]

Hello, and welcome to NeuroTalk! I'm sorry about your accident and the resulting pain. Take a look around, there are a lot of people who deal with pain who may be able to help you.

People who post here tend to be friendly and informative.

[DM]

Hello occ and welcome to NeuroTalk. Please make yourself at home and join in anywhere. Glad you found us.

[Kitty]

Hello and welcome to NeuroTalk.....glad you joined us here!

[GAIL REEVE]

I am another sufferer of a largeTarlov cyst in my sacral spine. I have suffered from this for at least 10 years, although I didn't know what it was until I had an MRI this fall. I suffer from low back pain, pain in my groins and buttocks, burning in my feet, and right-sided pain. I, like the rest of you have not gotten in help from the medical community until I came to Florida and found a neurologist who said she had interned with Dr. Edward Tarlov at the Lahey Clinic in Burlington, MA. Dr. Tarlov is the grandson of the Dr. Tarlov who discovered this cyst and which bears his name. I have an appointment with Dr. Edward Tarlov in July. In the meantime, I am very uncomfortable and most anxious to find out what course he has for me. I too have been researching this condition and have been advocating for myself. Have read the info on the Tarlov Foundation website, and have almost all of the symptoms of a symptomatic Tarlov cyst, which, most doctors dismiss but just don't know how to treat. I was referred to a neurosurgeon here in Florida who validated my symptoms but would touch me with a "ten foot pole" I appreciated his candor. He encouraged me, as did my neurologist to go to the Lahey Clinic to consult with Dr. Tarlov.

[jane d mccartney]

hi & welcome
we have a site for occipital neuralgia look down the list & you will see it.
there a quite a lot of us suffering from this very painful affliction,
i had my 16th nerve block last wk so know what it is all abought.
regards jane

[Darlene]

Hello and welcome to NeuroTalk. Great to see you have come to be with us. You will find a great number of caring, supporting members here willing to help each other as they can.

Again welcome, looking forward to seeing you around.

Darlene