Hi! My name is Mary and I was just dx with this horrible syndrome on Feb. 24. I remember it as the day I finally knew I wasn't crazy!!!, but the day that I didn't know what I was in for.

I was hurt at work and as soon as they heard the word Causalgia they went nuts. They hurried and sent me to another doctor in another city to say I don't have it, so now I have to suffer while my attorney fights with them. This is the worse pain I have ever had and I don't know what I'm going to do. I know from reading your stories alot of you have been suffering for years. How do you handle it? I need help dealing with this! I'm just a cub and the lion is roaring with this pain!

Thanks for listening!!

Mary

Hi Mary and welcome to NeuroTalk. Ouch! I'm sorry you're in so much pain.

You may want to stop by the RSD forum which is here. http://neurotalk.psychcentral.com/forum21.html

The chronic pain forum is here http://neurotalk.psychcentral.com/forum10.html.

This is a very supportive, caring and friendly community. Just jump right in ((Mary)).

Hi Mary, and welcome to NeuroTalk!

I'm so sorry you are having to deal with so much pain.

This is a great place to come to for answers, help, friends, and comfort. Take a few moments to have a look around. There are even games to play that may help take your mind off your problems for awhile.

Hello and Welcome to Neurotalk Mary - it's great to see you here and you will meet many great people who im sure will be more than happy to help you if they possibly can!!!

I'm so sorry to hear that you are in so much pain and that you currently dont know what is wrong with you!! I really hope that you can get a diagnosis real soon and get to feeling better!! IF it is RSD (also known as Causalgia) it is really important that you try and get diagnosed and treated as quickly as possible to have the best chance of reaching remission. Please dont give up hope and try and find a doctor that wants to help you - I know it is hard sometimes but it is worth it when you find someone that actually believes you!!

I suffer from RSD. It currently affects my left leg and both arms. I developed it when I was 12 years old after I fell and sprained my ankle and am now 14. I have tried all sorts of medications and procedures to try and put it into remission but none have really helped me so far. The only med that helps me is Ketamine but my doctor doesn't like me taking it as he feels it could affect my hormones because of my age etc. We are now seeking further options as a last resort to try and help.

If you need anything, please dont hesitate to ask!! I am more than happy to help you if I can because I DO understand some of what you are going through and understand how frustrating and scary it is when you dont have a diagnosis.

Please check out the RSD forum as hopefully you will find some help there!! Everyone is really nice and friendly so im sure you'll fit straight in!!

Take care,
Alison

...one hour at a time, as the next hour in the day I wasn't able to cop for a while. I would have to lay down for a while (45 degree angle), even out on the road. as the day went on, the time outs got longer. It's okay. you will get through it. I was upright for a couple of hours then down again... lots of praying; lots of cussing too.

Workers comp adds to your stress. It is hard to get a FAIR award, so you'll have to get tough to get what you can. Get then polish that emotion till it shines. You have to fight for it. They for sure are NOT going to give you anything. In the end, you will prevail. You have to believe that. You just have to jump through a lot of hoops. Keep good notes and keep up with your records if you're able.

I work in the legal field. The defense really know their job. They work hard too. You don't have to like it. It's okay. try not to take it personal.

You're not alone here. don't hestitate to ask us anything. We're here for you.

Hi Mary and welcome to NeuroTalk! I'm sorry you're having so much pain.....I hope things ease up for you soon. I'm happy you decided to join us here.

Kitty,

Thank you so much for your reply to my post. I needed that it made me cry, but in a good way. The posts I have gotten have all been so nice. I think this is going to be a very helpful place for me. By the way I love your kitties.

Mary

welcome to neurotalk ... there are lots of friendly and supportive people here so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help ...

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene