[annietre]

Hello evryone,

Well i guess I start from the begining, five years ago the right side of my face started with hemmi facial spasm... we think been thru alot of test MRI, Blood, Spinal tap Cat scan you name it I had it. Then two years ago I had a Seizures, but was told that it was a stress seizure now I was told that the eeg showed that I have epilepsy and now they found white spots on my recent MRI... I just dont know who to believe anymore.... just seems it is a guessing game and doctors go with there gut feeling but do they realize that we are human and have feeling and families and lives.... I guess I just need to vent and dont know where to go from here any advise

[azoyizes]

Hello annietre, and welcome to NeuroTalk! We're so glad you found us!

To get you started, here is a link to the Epilepsy forum.

http://neurotalk.psychcentral.com/forum11.html

[Darlene]

Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

[(Broken Wings)]

Hi,

Glad you stopped in.

Here is a link for epilepsy

http://neurotalk.psychcentral.com/forum11.html

I hope you find some answers.

There's lots of info. Just ask if you need to know how to get around.

Originally Posted by annietre

Hello evryone,

Well i guess I start from the begining, five years ago the right side of my face started with hemmi facial spasm... we think been thru alot of test MRI, Blood, Spinal tap Cat scan you name it I had it. Then two years ago I had a Seizures, but was told that it was a stress seizure now I was told that the eeg showed that I have epilepsy and now they found white spots on my recent MRI... I just dont know who to believe anymore.... just seems it is a guessing game and doctors go with there gut feeling but do they realize that we are human and have feeling and families and lives.... I guess I just need to vent and dont know where to go from here any advise

[knittenkitten]

Welcome. It is so frustrating when the Docs can't figure out what is wrong and keep making guesses. Don't give up though. Keep pestering them until someone takes the time to do all the tests and come up with an answer.

I had a Doc that I really trusted and thought of as a friend. He and his wife used to socialize with us and everything. Finally, after many years of treatment he told me he thought I was "hypervigilent" and there was nothing wrong with me. I felt so betrayed. I went to a new Doc who did the right tests and gave me a true diagnosis. It gets tiring but it is worth it.

[DM]

Hello Annie and Welcome to NeuroTalk. I hope you take a look around and make yourself at home. Glad you found us.

[FranksAngel]

welcome to neurotalk ... there are lots of friendly and supportive people here ... i see you already have the link to the epilepsy forum so jump right in and start posting ... should you need help, don't hesitate to ask someone ... we are here to help