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Old 04-20-2009, 03:44 PM #1
betty21 betty21 is offline
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hello - im new on here!i have chiari and hydrocephalus, as well as possibly chronic migraines and restless legs!! and all the other things!

anyway things are not good at the moment - the impact of this whole condition and experience has just been awful for me and my femaily - i feel i was never given any support after surgery and am finding things difficult to cope with!

plus im totally knackered all the time which is just relaly hard wowrk!
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Old 04-21-2009, 05:54 AM #2
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So sorry you're not doing too good. It's okay. We don't do too good either.

I don't know too much about your condition. There may be others who will come along and give you direction.

I hope you find some peace today.

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Originally Posted by betty21 View Post
hello - im new on here!i have chiari and hydrocephalus, as well as possibly chronic migraines and restless legs!! and all the other things!

anyway things are not good at the moment - the impact of this whole condition and experience has just been awful for me and my femaily - i feel i was never given any support after surgery and am finding things difficult to cope with!

plus im totally knackered all the time which is just relaly hard wowrk!
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Old 04-21-2009, 09:16 AM #3
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Hi Betty, and Welcome to NeuroTalk!

I'm sorry you have so much to deal with right now. NT is a great place with many forums with interesting topics, and lots of friendly and caring people.

Here are some links to forums that deal with some of your illnesses.

http://neurotalk.psychcentral.com/forum71.html

http://neurotalk.psychcentral.com/forum32.html

http://neurotalk.psychcentral.com/forum65.html
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Old 04-22-2009, 01:45 AM #4
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

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Old 04-22-2009, 06:00 PM #5
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Hi Betty and welcome to NeuroTalk. Sorry that you're going through so much. It's hard on the family just as it's hard on the one actually experiencing the condition. You'll find lots of support here....I'm glad you decided to join us.
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Old 04-29-2009, 04:19 AM #6
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thanks for all the kind messages - sorry its taken me a while to reply!
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Old 04-29-2009, 02:09 PM #7
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Welcome to Neuro Talk! Great info folks before me have given you...just wanted to say HI
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Old 04-29-2009, 03:16 PM #8
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Hello Betty and another welcome to Neurotalk here. I hope you can check out the links given and browse around, as there is alot of great info here and everyone is really helpful and friendly.

My niece has Chiari's too, and she's just miserable w/it. Her headaches are just awful. Hope you feel better soon. Glad you found us.

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