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Old 07-09-2009, 02:07 PM #1
semilesh semilesh is offline
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semilesh semilesh is offline
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Confused Chiari Malformation type I

Hey there!

I've never posted any threads before but I am looking for some information on my conditions.

First of all, I have just been disgnosed with Chiari Malformation type I. I've done a bunch of research so I have a good idea of whats going on but now it looks like surgery might be the only option and thats what makes me nervous. I have an 11mm protrousion as far as my chiari goes and my syrnix went from 8mm long and 2mm wide to 2cm long by 3mm wide in 5 months. I have a neurologist appointment to find out exactly what this means in a month but I just can't seem to find information regarding measurements anywhere. I just don't know at what size a syrnix becomes dangerous or what is considered a "serious" chiari protrustion.

The second thing I have a question about it that during my last MRI I found out that i have developed a kink in my brain stem. I can't seem to find out what times means or what problems this can cause. The only information I can find it regarding fetal brain kinks.

So, I was wondering if anyone out there has any information about this they can give me. My doctor has told me that I can't do push-ups, sit-ups, run, jump, squat, lift more than 20 lbs or be on my feet for more than 30 minutes. I was also was wondering are these just precautions or can these things really make my condition worse. I am in the military so I figured maybe they were just over reacting but if anyone has any information regarding anything I would really appriciate it! Or even if someone has a similar experiance they would like to share, anything is welcome! Please e-mail me at or just respond to this. I'll get an e-mail first but either way is fine. Thank you!
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Old 07-12-2009, 11:03 PM #2
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Welcome to our community and thank you for your service.

I've seen a few posts regarding your condition. Not a lot out there, huh?

Sorry about your dx. Give it a little bit and maybe someone with more knowledge will come along.

Here is a link to chiari malformation

http://neurotalk.psychcentral.com/forum71.html

I hope you find answers and peace in your life

(Broken Wings)


Quote:
Originally Posted by semilesh View Post
Hey there!

I've never posted any threads before but I am looking for some information on my conditions.

First of all, I have just been disgnosed with Chiari Malformation type I. I've done a bunch of research so I have a good idea of whats going on but now it looks like surgery might be the only option and thats what makes me nervous. I have an 11mm protrousion as far as my chiari goes and my syrnix went from 8mm long and 2mm wide to 2cm long by 3mm wide in 5 months. I have a neurologist appointment to find out exactly what this means in a month but I just can't seem to find information regarding measurements anywhere. I just don't know at what size a syrnix becomes dangerous or what is considered a "serious" chiari protrustion.

The second thing I have a question about it that during my last MRI I found out that i have developed a kink in my brain stem. I can't seem to find out what times means or what problems this can cause. The only information I can find it regarding fetal brain kinks.

So, I was wondering if anyone out there has any information about this they can give me. My doctor has told me that I can't do push-ups, sit-ups, run, jump, squat, lift more than 20 lbs or be on my feet for more than 30 minutes. I was also was wondering are these just precautions or can these things really make my condition worse. I am in the military so I figured maybe they were just over reacting but if anyone has any information regarding anything I would really appriciate it! Or even if someone has a similar experiance they would like to share, anything is welcome! Please e-mail me at or just respond to this. I'll get an e-mail first but either way is fine. Thank you!
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Old 07-14-2009, 10:09 AM #3
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Hello semilesh, and welcome to NeuroTalk! We're so glad you found us!

This is a very nice place with lots and lots of caring, friendly, and very helpful people.

Below is a link to the General Health Disorders. You may find some help or answers there with your brainstem problem.

http://neurotalk.psychcentral.com/forum2.html

I wish you all the best.
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Old 07-17-2009, 11:46 AM #4
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Hello and welcome to NeuroTalk! I see you've been given directions to the Chiari forum so please make yourself at home and join in wherever you feel comfortable.
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Old 07-20-2009, 01:15 AM #5
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Welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around. Thoughts and prayers to you.

Darlene
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Old 07-20-2009, 01:34 PM #6
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[COLOR="Blue"]Hello semilesh and welcome to NT. my dear niece had surgery at Wake Med in NC for correction of her Chiari's. She had been living w/the headaches and pain for so long, but her surgery became a necessity and she is now recuping and glad she is over that hump.

As Brokenfriend already pointed you in the direction of the Chiari forum, I will just add that I am glad you found us and I hope you take a look around and make yourself at home.


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