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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
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08-16-2010, 11:22 PM | #1 | ||
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08-18-2010, 03:10 PM | #2 | ||
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08-18-2010, 09:47 PM | #3 | ||
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09-06-2010, 08:52 AM | #4 | ||
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Diagnosed few days ago... pain has been on and off for several years.. followed typical pattern. treatment for sore throats,,T&A age 40, metal taste in mouth,,dental work,acid reflux, the last year has been 50% full of pain... just started triliptal and tapering up to 2400mg over next month with nuerologist orders... day three and nausea begins... Any how any informations will be helpful!... tips for pain releif,,,, work,,,dealing with focusing,, i seem to have short term memory issues,,
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01-25-2016, 09:46 PM | #5 | ||
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I've had this nasty GN for over four years. I was on the maximum doses of Carbamenzaprine and Gabapentin. The pain would explode in my head and after the max doses, the neurologist said there was nothing else they could do and sent me to a neurosurgeon. Shortly after I was sent to an ENT doctor and had the injection done, the pain went away. That was eight months ago and the pain has come back in full force. I haven't read anywhere about the pain exploding in the head and wondered if anyone else has had this much pain. I don't know if I can take the Carbamenzaprine again. Thank you for the Neurotin information. Will see if that might be an option.
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01-26-2016, 08:23 AM | #6 | ||
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I've been diagnosed with GN for 3 months now and every morning I wake up in excrutiating pain. It feels like there are knives stabbing at my throat. It's interesting to know how everyone's GN started. I've tried everything from muscle relieving/relaxing cream on outside of my neck/throat to numbing throat sprays and naproxen-extra strength Aleve. Throughout the day it feels miserable, like there is something , a lump just sitting in the back right side of my throat. Glossopharyngeal neuralgia is a horrible feeling in the throat. Every night when I go to bed I tell myself it will be hone in the morning, but each morning so far the pain is still there. When I swallow my saliva it's the worse bit I'm ok when I eat food. I honestly hope it goes as quickly as it came.
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09-22-2016, 12:43 PM | #7 | ||
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Hello All,
I am coming here with a likely suspicion of GN and GPN. Hopefully someone here can help to confirm if they have simular symptoms. I do not have the traditional 'shock-like' pain, I have a constant burning in my ear, sore throat and tongue that fluctuates from an always present dull ache to searing debilitating 'electric fire' pain that lasts for hours even the entire day. Additionally, I seem to have some TN symptoms of a tingling painful burning front of the mouth (teeth mostly) and jaw. The facial pain seems to pulsate somewhat like a low 'spasm' of pain. These symptoms aren't related to GN or GPN are they? My 4th MRI included an AICA loop suprolivary fossette, presumably impinging on the root entry zone of the glossophararngeal nerve' Has anyone undergone a diagnostic nerve block prior to MVD? If so, by who? The MVD surgeon, or a pain Mgt specialist I am having a difficult time being able to obtain a provider for what I believe is a critical step in the diagnostic process. |
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