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Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Glossopharyngeal Neuralgia

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Old 08-16-2010, 11:22 PM #1
McLovin McLovin is offline
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Originally Posted by tvoss123 View Post
Hi there,

I have had GN for 17 years.I have been on 1200mg of Carbatrol for nine years and have developed more side effects and pain in spite of it. Now I am faced with the surgery. My question is about the results of the surgery. At Mayo Clinic, they plan to decompress and sever the nerve. I am concerned about what I will lose besides the pain. Has anyone had this surgery with the nerve being severed? As far as I have learned in reading, the nerve goes to the tympanum, controls the bitter taste buds at the back of the tongue, and goes to the pharynx that aids in swallowing. The taste buds will die, and I don't know what else will happen. Will I no longer be able to swallow? I have the surgery scheduled for next month, but need more answers.
Thank you,
Tammy
Why are they severing the nerve?
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Old 08-18-2010, 03:10 PM #2
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Default Tammy,,,,,
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Originally Posted by McLovin View Post
Why are they severing the nerve?
The nerve does not, should not, be severed. They need to place a teflon sponge in between the artert and the nerve. Boom. You are fixed. No severing.
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Old 08-18-2010, 09:47 PM #3
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The nerve does not, should not, be severed. They need to place a teflon sponge in between the artert and the nerve. Boom. You are fixed. No severing.
My thoughts exactly.
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Old 09-06-2010, 08:52 AM #4
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Confused Just diagnosed with G.N...looking for any infomation
Diagnosed few days ago... pain has been on and off for several years.. followed typical pattern. treatment for sore throats,,T&A age 40, metal taste in mouth,,dental work,acid reflux, the last year has been 50% full of pain... just started triliptal and tapering up to 2400mg over next month with nuerologist orders... day three and nausea begins... Any how any informations will be helpful!... tips for pain releif,,,, work,,,dealing with focusing,, i seem to have short term memory issues,,
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Old 09-07-2010, 08:31 PM #5
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Unfortunately, the only tips I can give for pain relief is the medication. I was taking a ton of it before I finally decided to have the surgery. It got to the point that the pain from the GN, and the side effects from the medication were both equally bad. I like not having the pain now. But I am also thrilled to not be taking a ton of medicine. I never had the taste problem that others seem to have. If the pain is that bad, I would strongly consider surgery.
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"Thanks for this!" says:
katie1cross (09-09-2010)
Old 09-09-2010, 12:10 PM #6
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I find it quite difficult to navigate this forum. Please **message me** and I will tell you of my happy news !!

Tess
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Old 09-09-2010, 01:11 PM #7
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I got my PCP to send me to a Neurosurgeon. Prolly cause I was writhing on his floor crying. Neurosurgeon is doing a full scar MVD this Monday. He thinks there may be trigeminal involvement as well. Wish me luck!

Tess
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Old 09-09-2010, 03:49 PM #8
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Default cant get enough sleep!
day 7 in my ramping up of triliptal and I am so drowsy!!! I am afraid to drive. only go to grocery and bank.. i feel like i am a hundred..
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