Sorry about your diagnosis. I have been living with GN for 3.5 years. Had a one year remission but when it came back in June, it came back in a big way. I am lucky enough to get surgery on Monday and hopefully, I will be a good statistic. As in cured. I can't live on the meds and they really don't work well anyway. Right now I am on tegretol 800mg and lyrica 300 mg. I haven't raised the dosage in 2 weeks so the effects are nearly gone and I am going on my 3rd really bad day in a row. I feel like I am at toxic levels already with double vision, balance problems, and difficulty finding words. It is difficult to drive and basically to live a normal life. I have been off work since the 16th of August. Surgery is my only choice.

Anyway, welcome and I hope for luck with the meds.

Tess

good luck hop all goes well keep us updated!!!

Hoping and praying that all went well today. Hopefully your recovery goes better than mine. Since my MVD I have had trouble swallowing food and have had considerable voice loss. Found out that I have a paralyzed left vocal chord. I have a follow up appointment next week and will go from there. I couldn't eat in the hospital following my surgery and could barely drink anything. I think this made my recovery much harder. It wasn't until the last day in the hospital that I was able to take any pills. The good thing is that I have felt no pain from GN or TN.

In a couple more days I will be completely off of my medication, which is just about as good as being pain free. I have been out of work since the end of June, but will return in two weeks.

Let us know how you are doing. Good luck!!