Bilateral ON and dealing with insurance....
 

Hi to all...

I am reading the posts and sympathize and empathize with all that has been mentioned. I have been suffering from ON for almost 12 years now and have gone through the rat race of doctors, meds, etc. I finally was able to have a neurostimulator implanted for my ON at Northwestern University.
Needless to say, the process to have that approved by insurance was almost as bad, if not worse than dealing with the pain itself. Now, I am dealing with pain again on the opposite side of my stimulator (Go figure, right???)
Please do not give up on getting your insurance company to approve this. Read their medical policies, talk to your corporate HR representatives....FIGHT!!! This process helped me reclaim my life and my functionality. I no longer have to depend on high powered meds to cut the edge from the pain. Now, I can adjust my stimulater (On what I now call my good side) and have minimal meds to help me cope with the potential of breakthrough pain, which does happen from time to time.
Has anyone here had issues with bilateral ON developing later on??? I know that I don't want to have to fight again, but this time, I know what I am dealing with. If anyone needs suggestions, or has any suggestions / advice to share, I am all ears!!

My best to you all in your journey.

video about PNS.....
 

http://www.painclinician.com/video/id/88
reason for sharing this is to help other understand the PNS surgery and its purpose I do NOT promote any surgeon hospital clinic . I have one since 2002 and it works good

edit to say -- I do not have O.N. I have T.N.