Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 05-17-2010, 04:11 PM #1
TrapezeGirl TrapezeGirl is offline
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Join Date: May 2010
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10 yr Member
TrapezeGirl TrapezeGirl is offline
New Member
 
Join Date: May 2010
Posts: 1
10 yr Member
Default Why is this happening to me!?!?



For the past ten years I have lived with Basilar migraines..the kind where you go blind and paralized...then two years ago after horrific sinus surgery (x2) I ended up with Genicular, Occipital, & Cranial Neuralgia.

I am on SO many pain medications. I am practically a walking pharmacy. And now my pain doctor is pawning me off onto another doctor b/c he just doesn't know what to do any more. And I want off my meds and he doesn't feel comfortable doing that.

How am I supposed to deal with the excrutiating daily pain, while trying to go back to school and hold down a job? And getting tossed around between doctors?? This is unimagineable. Plus, I am NOT looking forward to the detox from the pain medications. I never would have gone on them if I had known how bad the detox would be!

My quesiton is; how does everyone else cope with the daily pain? The doctors thinking that you are crazy or med seeking?


Frustrated and missing the trapeze
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