Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 07-11-2008, 08:02 PM #11
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HI Jane,

I use the patches for my TN as well as ON. I cut them in small strips and place them on the most severe pain. For the ON, yes I need to place it in with all the hair I have found if I cut them small enough, they work well and stay on the scalp. I also put a larger one at the base of the skull, it seems to help. Best of luck!! Nikki
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Old 07-29-2008, 03:46 PM #12
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Originally Posted by Nik-key View Post
HI Jane,

I use the patches for my TN as well as ON. I cut them in small strips and place them on the most severe pain. For the ON, yes I need to place it in with all the hair I have found if I cut them small enough, they work well and stay on the scalp. I also put a larger one at the base of the skull, it seems to help. Best of luck!! Nikki


Thanks Nik-Key keep trying them but don`t seem very succsessful but won`t give up yet. i am down to have another nerve block but that isn`t until 25th sept my pain doc is away on hols. until then. i know these patches are having a great impact on so many people in pain regards sophia

Last edited by Curious; 03-07-2009 at 02:30 PM. Reason: nt guidelines
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Old 07-31-2008, 07:32 PM #13
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Default Just an update...

Well, I've just had my latest nerve block. I had it done on Wednesday by my neuro. It's just starting to work now, just on 2 days later.
I can feel my pain level dropping and my mood lifting already! lol
~Jaime~
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Old 08-08-2008, 12:06 AM #14
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That is wonderful news Jaime! How is working now? Hope you are still getting relief
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Old 08-08-2008, 11:50 PM #15
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That is wonderful news Jaime! How is working now? Hope you are still getting relief
Yes, it's still working well, thanks. That's one less pain to deal with anyway!
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Old 08-13-2008, 09:27 AM #16
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Fantastic! Glad to hear it. My last block was a total disaster, I haven't been brave enough to try it again. But, so glad it is bring you relief~ Nikki
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Old 09-16-2008, 08:14 PM #17
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hello all my name is Frank I have MS and as of late severe headaches, I go for my first never block on june 2, hope it works wonders
Me too! We're in the same club.
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Old 09-16-2008, 08:17 PM #18
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If you go to youtube and search ON, there is a 2 part vidoe of a guy with ON getting an ONS. It's interesting how well he did.
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Old 09-25-2008, 03:34 PM #19
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Originally Posted by Jaime_S View Post
Well, I've just had my latest nerve block. I had it done on Wednesday by my neuro. It's just starting to work now, just on 2 days later.
I can feel my pain level dropping and my mood lifting already! lol
~Jaime~

Hi Jaime
are you still doing o,k with your blocks ?
pain specialist has taken me off versitis patches as they were not doing any
good. i am now back on nerve blocks, had one today he is trying to get aeneasetic right into lft side of my face my pain being all in lft of head & face.
just had 5 docs watching & nurses trying to hold my hands as though i hadn`t had them before. not feeling good tonight & can`t lie down hopefully will be o.k in another couple of days.
regards jane
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Old 09-25-2008, 11:41 PM #20
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I'm glad to hear about someone who has had the stimulator inserted. I was diagnosed almost a year ago with ON and have been getting the injections every 2 months (or sooner depending on the pain). Because of this, the doc informed me of the option of the stimulator because he doesn't feel comfortable doing the injections so frequently. I really just want the pain to be gone. It hurts to lay down, drive, dance, or pretty much do most things, depending on how bad the pain is that day. I was wondering...do you notice the stimulator on a daily basis? Can you feel it or is it something that is very subtle?

thanks! and btw, I'm new to the board. So glad to have found you all!

-Ash
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