Yes, my ON block is still working. It's almost 2 months now, and I'm still getting good relief. The warmer weather seems to help too.
I hope the block you had soon starts working.

So, I watched the video and I must admit, it kinda scared the crap outta me. I have been referred to a guy who does the ONS and will probably be getting it done soon after exhausting many other techniques (and mind you, I'm only 20). Anyways, I'd appreciate any advice, guidance, etc. about the procedure.

Thanks!

My cousin, female 32, has RSD. It is localized to her right foot and leg. She says
it flares every few months. It is flared now. It burns, she says. Most of the pain is
in the foot she broke two years ago. When she had her first nerve block, she experienced
her first seizure. Now she has seizures every couple months. She doesn't jerk. She just
seems to pass out briefly, then, she doesn't know who family is for a few minutes. Her
speech is usually slurred too. Do you think this is from the nerve blocks? Also, how
intense is the permanent nerve stimulator? She is afraid to get one implanted.
Thank you

hi cheryl.

abbie, one of our mods, noticed you post and thought you may get more replies on our rsd forum. here is a link to you post that was copied there.

http://neurotalk.psychcentral.com/sh...ad.php?t=56835

I saw my pain specialist today and she is actively working on getting approval and funding for me to get an ONS. She said the gov't has approved a few for Angina pain and she is working on seeing if they will actually reallocate one of them for me.

While I would be glad to have the pain be gone permanantly, I am starting to feel a bit scared at the idea of having wires in my head and a battery pack in my abdomen.

ON is not for wimps! *laughs* I am only 37 and I think I'm too young to be dealing with the crud too! Especially since I was also diagnosed with MS this spring. How much more can a girl take? I spend far too much time at the hospital. I am hoping if I do end up getting this ONS, it would mean LESS time at the hospital.

Jane, my doc gave me hydromorphone to take at home for the pain following the injections. It helps alot and is an every 4 hours thing. Also, I lie with my head on an icepack after I get home and that helps the tenderness in my head. I have injections every week.

Sorry you are not feeling well. Just know you're not alone-I can totally relate.

*hugs*

prairiegirl, I have a neuro stimulator one lead is in back of head the other is lower right jaw area. You try it before they implant it.If you have questions or would like to talk let me know ,You can message me or I pop in and out of here to check on a couple pals that have o.n. your right it isnt for whimps or sissy.I have T.N. ...Anesthesia dolorosa and that is what my neuro stimulator is for the horrible face pain. it is not approved by the gov yet but it is a last resort when meds no longer work.
I hope everyone here is having lower pain levels and a nice weekend.

PEACE
BMW

I am so glad to have found this forum. I was diagnosed with ON stemming from a car accident over 7 months ago. I've had headaches/neck pain ever since the day after the accident.

I'm finally seeing a pain specialist after all this time and last friday I had my second round of Facet Blocks. They put me under a general anesthesia for the procedure. My PS tells me that he usually see's a 70%-80% improvement by the 2nd procedure. Unfortunately for me, the relief is only temporary and I go home with more neck pain then when I walked in there. It takes quite a few days to get even a little better, but by that time I'm in the office for my next set of injections (once a week for 3 weeks).

Has anyone else experienced this with the Facet Blocks? Little to no relief? I feel like my Dr's aren't actually listening to me when I'm telling them where it hurts. I really just want this to go away.. I can hardly remember what it's like to live day to day w/o some sort of neck/head pain.

Has anyone had a different procedure done to which they received a more noticeable result (relief)?

Thanks,
Lisa