LOL I was trying to picture you in pigtails and ace bandage:D The things we do for relief! If you cut it into small enough pieces it should stay on your scalp. I just hold there for a little bit to make sure it sticks good.
I wear them on my face as well for TN, so I understand what you mean about not wanting to go out in public ;)
Take care and let me know how it works for you~Nikki

janemcc
 

:confused:keep putting these srips on my face & they keep falling off
havn`t got time for head, with holding ones on my face, think i make pain worse with pressing these:( things in.:(
jane

sorry to hear that jane! The ones I get are very sticky and last for hours. Perhaps you could talk to your doctor about getting better ones? Or i know there is a special medical glue my sister uses, maybe that could work?

Wow there are so many storys here! mine is kind of a long one so here goes! i woke up about 2 and a half years ago with Bell's Palsy! (facial Paralysis on left side) and from that i have ended up with endless problems! i have got bilateral trigeminal neuralgia and occiptical neuralgia as a result of bell's i also have hemi facial spasms, hypercausis of the left ear (sensitive to all noise) and tmj as well, the bell's has cleared up i still have a droopy eye and chin when i get tired but otherwise i look normal! i am taking tegretol and having accupuncture for the pain, which are sort of working unfortunately i cant have any botox or surgery because otherwise i could get a paralysed face again it is too risky!

Low pain wishes to everyone!!!!
it was really interesting finding out how many different ways people have ended up with this horrific pain!

Mel :grouphug::grouphug::grouphug:

vesitis patches
 

Hi Nic Key
done it !! it`s been the cream on my face so now i only cream 1/2 face
& they are sticking great. sorry won`t need your sisters glue.
jane :)

I'm new here. I'm so glad to find other people that know what I'm talking about on this site. I try to tell my friends and co-workers that O.N. feels like being shot in the back of the head or else it's electrical zaps zapping all day in my head. And they look at me like I'm crazy. My O.N. was caused when I went on vacation to Yellowstone and I wore a baseball hat really, really, really tight for 10 days straight. I didn't feel like dealing with my thick hair every day, so I would put it up in a ball cap. My neurologist told me that I upset the Occipital nerves by doing this and I've been in pain for the last year. I'm thinking about accupuncture, but need to do more research on it. I'm getting really tired of going to the ER for the pain. The only thing that seems to help is muscle relaxers (Flexiril) and going on 3-4 mile walks in the evening. And I do not wear hats anymore!!!! I can not sleep on my back (with pressure on the back of my head). I can't wear turtle necks, heavy coats, nothing that will put pressure on the base of my skull or my neck.

Yes, it is interesting reading all these stories. O.N. and other neuralgia pain can be caused by so many things and happen in so many ways...
:hug:
~Jaime~

ON and Baseball Cap
 

Interesting, the baseball cap story. Because the cause of my ON (I think thats what it is) was due to me and a screen door colliding in some fashion. I hit it on the left side of my face right at the temple where the baseball cap lower part is. Had tingling and zapping for a while its lesser now due to the Neurontin. Feels like a spider was crawling around in side my scalp for a while there and like a sunburn all over my head, thats how I discribe it.
Some nites I sleep fine but some nights my head throbs. But seems like the tingling sensation is going away.

ON after TMJ Surgery
 

I had jaw surgery for severe TMJ. The surgeon feels that the TMJ was how I compensated for my facial structure. He believes everything is a result of a head injury probably in childhood. At any rate, I had bilateral dischectomies of my TMJ with Fat Graft. Came through surgery with RSD and what later became Occipital Neualgia. I am on Lyrica, Clexa and Ultram for nerve pain. Some of which has helped. The RSD has calmed down after 5 Stellate Ganglion nerve blocks. The ON, however, is never ending. I have had trigger point injections in my head neck and upper trap, sometimes they help, sometimes they don't. I've moved onto Epidural injections in c2/c3. The last round last week did not work at all and I went in yesterday (friday) at about a 9 pain level for the second round. If this round doesn't work, they said they would not do a third round. I'm wondering if anyone knows what's possibly next if this doesn't work? I'm scared to death that the steroids won't kick in. Right now the anesethtic has mostly worn off and my left side base of neck is killing me. I know I still have a few more days to wait for the steroids kick in...but I am out of patience with this whole thing. Can anyone tell me the next course of treatment beyond epidural injections? Thanks so much.
Geri

the injection for the nerve blocks are a piece of cake, they use so much of the paign killer first you cannot feel them. I have had 35 of them and they have helped me. but they only last for 24 to 36 hours. but great relief for the the time they work. snappy10 good luck and keep posting... there is strength in numbers