Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 08-18-2008, 06:09 PM #1
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Finally, I have an appointment with a new Pain management doc next week and I got a letter stating that someone should drive me in the event they do injections, so maybe there is a nerve block in my future and maybe some relief, finally. My head and neck are killing me and I'm having more trouble with sleep and my eyes. Keep your fingers crossed that this helps! I was posting about this somewhere else and I can't remember where, so I started a new thread.

Ellena
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Old 08-19-2008, 09:00 PM #2
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Hi Ellena, I hope your new pain doc works out. I tried the epidural which helped my arm symptoms but not the head symptoms. Saw an associate of my pain doc and she was great, was able to reproduce my symptoms with trigger points in my upper back(symptoms to lower head) and pressure on my occipital nerves by my suboccipital muscles(symptoms over top of head/forehead). So plan to get bilateral nerve blocks next week, and maybe talk about botox injections.

Take Care, Diana
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Old 08-20-2008, 01:34 PM #3
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Hey pal You know my fingers toes arms legs and eyes are all crossed.
I have heard lots of good things about nerve blocks and I pray it is going to help you also. I am just going to keep saying that out loud over and over ..positive thoughts and prayers. This is going to work to help controll the monster pain. You so deserve and earned that there can be no other way but for it to help! I think it takes a day or 2 for it to kick in fully not sure but i think. keep us updated and next week I pray is your week to finaly get relief and controll!
Peace
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Old 08-21-2008, 07:53 AM #4
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Oh that's great news Ellena - about time too!

I've got everything crossed for you. Please let us know how you get on.

Best of luck
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Old 08-25-2008, 10:53 AM #5
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Well, the doctor went over everything and they have me scheduled for this wednesday. He agreed to do the occipital blocks first since that is most troubling for me and then he'll treat the spine (C5 & 6 and 2&3). I'm hopeful and I found him very easy to talk to as well.
Ellena
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Old 08-25-2008, 12:05 PM #6
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I am praying this is going to be the week you find sucess over your pain, and the blocks work just like the name ..."block" out the pain for a good many months. 'member to eat healthy and get rest before and after well a.m.s.p.
sending positive thoughts and pain free vibs to you Ellena
PEACE
BMW

p.s. glad ya made it threw Fay that was a "loopy" storm. see another down by cuba aiming at us. It is good you see doc this week many blessings and you will be on my mind and prayers all week and wendsday extra lots ,let us know how things go when you are able.
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Old 08-25-2008, 03:51 PM #7
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Thanks so much. I'll post as soon as I can. On the storm front, the ground is so squishy from so much rain that it's going to take a week for it to dry up. I hope the others break up or go elsewhere - its too painful to have these things around as my pain has escalated throughout all of this. Serious thanks for your good wishes Ellena
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Old 08-27-2008, 06:10 AM #8
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Ellena your in my prayers today.I hope things go exceptionaly well at your apt.
Sending positive thoughts all day long.
PEACE
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Old 08-27-2008, 04:58 PM #9
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Hope you are home and resting and i hope more then anything that it all went extra well! let us know how your doing and how ya feel when you can..but take it easy,and rest first.
PEACE
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Old 08-28-2008, 07:14 AM #10
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He did the occipital block first and once he got the area numb, I was pain free for the first time in such a long while that I realized that I've forgotten what it feels like to have no pain. Thats really sad. Anyway, because they gave me some demerol and versed before hand, I spent a lot of time sleeping yesterday and taking it real easy. He did some type of trigger point injection in my neck and I can't elaborate on it as the details are still fuzzy with me so I've got to wait till I go back in three weeks for him to start working on the spine.
Today, I can tell that there is medicine in my neck and head. I feel some stiffness and a weird sort of fullness. He told me to use ice for the swelling which I'm going to start doing today. I didn't notice it yesterday and I stayed numb for quite a long time. I thought he'd be able to do both sides of my head but he explained that they can only do one side at a time as it would be too much to deal with otherwise. He also used florescopy while doing the entire procedure. So, my fingers are crossed that the steroids will bring some lasting relief as yesterday felt pretty awesome while it lasted. I'll post periodically about how things are going. Thanks for all the support here everyone!
Ellena
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