Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 07-31-2008, 08:30 PM #1
mindyeva7 mindyeva7 is offline
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Default Anyone have a nerve ablation? Also spur

My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs?
Thanks
Mindy
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Old 08-01-2008, 05:02 AM #2
Kathi49 Kathi49 is offline
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Mindy,

I haven't had an ablation at the C2/C3 level but have had facet injections which work fairly well. Now, years ago I was told I could have an ablation but my PM warned me that there could be ongoing or permanent pain. So, I never opted for any of it in my neck...had to have two fusions instead anyway because of bone spurs and herniations. However, I do know of people who have had the ablations done in their neck and did well. I can say that it can take awhile for the nerves to die back so to speak. But six weeks sounds a bit long. And who did the ablation? Since your girlfriend has conflicting reports about the pain generator it may be that she needs diagnostic injections OR to see a Neurosurgeon. I hope she can get some answers. The C2/C3 can be very, very painful. Oops, forgot to add...even with the two fusions I still have plenty of bone spurs. What I normally do, when it acts up to the point no meds will touch it, is to get injections from time to time. And I can full well understand how she can't sit at a PC. I was in IT when it hit me and could barely function; had to retire about 3 years later and after two surgeries. Poor thing...I wish her well in finding the right answers.
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Old 08-01-2008, 05:14 AM #3
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Quote:
Originally Posted by mindyeva7 View Post
My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs?
Thanks
Mindy
hi there i suffered from a spur myself in my foot which was extremely painfull and resulted in a tendon and nerve release last year which has now left me with nerve damage in my foot and ankle .They never removed the spur which had caused the problem in the first place .I now have to go through a nerve block which involves the circulation being cut off to my foot which i have heard isnt very pleasant and i have to stay awake during the whole procedure.Have they said if they are going to remove your wifes spur? ali
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Old 08-01-2008, 05:58 PM #4
mindyeva7 mindyeva7 is offline
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Have they said if they are going to remove your wifes spur? ali
lol - friend
Well, that's sort of the question. One doc said they needed to be removed, the other said no. So of course insurance wants to fight it. I am curious why they don't just remove spurs anyway? My other friend also has a spur on her heel and it causes probs with her tendons too.....why not just remove the cause instead of treating the symptoms it causes?
Anyone have cryoneurolysis? quote"This technique uses extreme cold (minus 70-180 degrees F) to freeze nerves in an ice ball, thereby interrupting transmission along that nerve for up to 3 months. " ???
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Old 08-03-2008, 09:22 PM #5
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Quote:
Originally Posted by mindyeva7 View Post
My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs?
Thanks
Mindy
Hi Mindy,
I am new to this forum, just wondering if the pain from the ablation ever got better. I have heard conflicting information to wether this works or not? I am supposed to have a c2 ablation done and am worrying if it will just make the pain worse. What was your ablation for? Mine is for occcipital neuralgia been going on for 10 years. No-one seems to be able to help. Have tried all drugs, but make me feel to bad. Hope you are doing much better.
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Old 09-14-2008, 05:20 PM #6
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Mindy, hi

I have occipital neruolgia the problem is the occipital nerve is swelled in the C2 area. The coating is off the nerve. I recently underwent the ablation of the ganglion on the left and right side. The burn was done for about four minuteson each side.
The doctors told me that I might have to do it again and I am going back the 19 th. of september 2008.

The first time the results were ..... for the first three or four days it was real good. but as time went on the pressure has returned and the pain is not as severe but is constant and my head still radiates and the neck pain has returned and my nerves in my legs are pulling again and it has been about four weeks and I am going back to have it done again.

I would like to hear from someone who has done the decompression surgery .

I would like to know where is a good place to have it done at.
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Old 09-22-2008, 09:39 PM #7
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Quote:
Originally Posted by mindyeva7 View Post
My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs?
Thanks
Mindy

I have just had one done last friday.... update snappy10
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Old 09-25-2008, 11:07 PM #8
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Quote:
Originally Posted by mindyeva7 View Post
My girlfriend had a nerve ablation at C2 about 6 weeks ago. It doesn't seem to have done anything but make her worse! I would like to hear from anyone who has had one and their experience. She can't sit up to use the computer so I am doing the research.
She also has a fairly large bone spur in the area, she has has conflicting reports from 2 docs as to whether or not this is causing pain. Anyone else with spurs?
Thanks
Mindy
We have had similar oblations........ how long was the burn............where did they do it at.... mine was done in Indianapolis.... my second one....... do u have an update?????? hope you are better.....

my side affects are changing almost everyday to more problems or the same problems comming back. One thing is that I do not vibate on the left side so far....the ringing in my left ear has returned.....now ringing in both ears like before....this occipital nerve must be tough.....it has withstood 19 minutes of burn.... on each side........and still kicking......

I want to check out the decommpression surgery being done by dr.Jho or the same surgery being done at the university of pittsburg pa. check out the web site of dr. Jho on the C-2 decompression surgery.... I saw it on T.V. last week....My only recourse at this hospital is cut the nerve and that is not what I want to do next.....best wishes......snappy10
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Old 09-26-2008, 03:47 PM #9
snappy10 snappy10 is offline
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We have had similar oblations........ how long was the burn............where did they do it at.... mine was done in Indianapolis.... my second one....... do u have an update?????? hope you are better.....

my side affects are changing almost everyday to more problems or the same problems comming back. One thing is that I do not vibate on the left side so far....the ringing in my left ear has returned.....now ringing in both ears like before....this occipital nerve must be tough.....it has withstood 19 minutes of burn.... on each side........and still kicking......

I want to check out the decommpression surgery being done by dr.Jho or the same surgery being done at the university of pittsburg pa. check out the web site of dr. Jho on the C-2 decompression surgery.... I saw it on T.V. last week....My only recourse at this hospital is cut the nerve and that is not what I want to do next.....best wishes......snappy10
I would like to show you something I have read..... go to mdjuntion.com and log in. Then go to occipital neuralgia and read my posts and others that have told me about decompression surgery....... wow ???????????
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Old 09-26-2008, 07:11 PM #10
Kathi49 Kathi49 is offline
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Snappy,

I am from Indianapolis too. WHERE did you have the nerve ablation done? If you want or need the name of a good PM that treated me for all of this, I can give you his name. He is an Anesthesiologist with a background in Internal Medicine and Pain Medicine; Board Certified, etc. His speciality is "cervical pathology and headaches coming from the cervical spine". He is now the Director of the Spine Clinic at a certain hospital. And I will just add I was being seen somewhere else for 3 years with no relief in sight! Then a co worker of mine told me about the doc I am referring to and he was my savior!! Anyway, if interested, let me know.
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