 |
|
| Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.) |
| Reply |
|
|
Thread Tools | Display Modes |
|
|
01-30-2009, 11:23 AM
|
#1 | ||
|
|||
|
New Member
|
Hi everyone
New to site. Glad I found it. I have had UN for the last 5 years plus. I have been to every major hospital on the East Coast including Hopkins, Georgetown and Jefferson. I have tried just about every treatment out there including major surgery. Still nothing. You name it, I have tried it...at least that is what I am told. I look forward to reviewing the forum to see if there is anything new to the field of research. Right now I manage day to day by grinning my teeth and taking Hydro, morphine or hydromorphone. Life sucks with UN. But I am glad there are others to share with. |
||
|
 Reply With Quote
|
|
01-30-2009, 01:05 PM
|
#2 | |||
|
||||
|
Co-Administrator
Community Support Team
|
What does the U stand for, I tried to search for it, but not finding anything.
I'm sure the N is for neuralgia of some type. 
__________________
Search the NeuroTalk forums - . |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | pono (03-08-2009) |
|
01-30-2009, 02:49 PM
|
#3 | ||
|
|||
|
New Member
|
My mistake
I meant ON. I have been working on some govt papers and have the UN on my mind. I have Occipital Neuralgia. My fault. Please forgive me. I am having pain today that started last night. Not much sleep which is why I make simple mistakes. Look forward to chatting on this site. I am close to losing hope and to hear from others has lifted my spirits. Thank you |
||
|
|
Reply With Quote
|
|
01-30-2009, 04:05 PM
|
#4 | |||
|
||||
|
Co-Administrator
Community Support Team
|
I can fix the title for you.
hang in there.. You can read the stickys { http://neurotalk.psychcentral.com/thread45497.html }and threads of others til you get more replies here.. 
__________________
Search the NeuroTalk forums - . |
|||
|
|
Reply With Quote
|
|
01-30-2009, 05:58 PM
|
#5 | ||
|
|||
|
Member
|
Welcome UCC, but sorry you're here. I can relate to your pain all to well and the lack of sleep. ON has made me really appreciate what it used to be like to sleep well. What treatments have you tried?
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | pono (03-08-2009) |
|
02-01-2009, 11:53 PM
|
#6 | |||
|
||||
|
Member
|
Welcome to the club and so sorry to have you have to join. I have ON too and I am on hydromprphine-both the 12 hour one and the 4 hour one right now. I am having horrible insomnia from it and no appetite. Does it bother you at all? I take sleeping pills but they mostly don't help.
I see a pain specialist and had one surgery in Nov and am having another in 3 weeks. |
|||
|
|
Reply With Quote
|
|
03-21-2009, 10:39 PM
|
#7 | ||
|
|||
|
Junior Member
|
Quote:
Robert D. Gerwin, MD, private practice pain management. Pain and Rehabilitation Medicine, 7830 Old Georgetown Drive, Suite C15, Bethesda, MD 20814-2432; T: 1-301-656-0220 F: 1-301-654-0333 Website: http://www.painpoints.com/ |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | pono (03-22-2009) |
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| New Member - RSD | New Member Introductions | |||
| new member needs help | Thoracic Outlet Syndrome | |||
| Hello from new member | New Member Introductions | |||
| Greetings from a new member! | New Member Introductions | |||
New member ON Tried Everything
Hybrid Mode
