Occipital Neuralgia and other Cranial Neuralgias For discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. (Trigeminal Neuralgia has its forum below.)


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Old 12-04-2008, 01:22 AM #1
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prairiegirl prairiegirl is offline
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prairiegirl prairiegirl is offline
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Join Date: Sep 2008
Location: Western Canada
Posts: 101
15 yr Member
Default Feeling grumpy

Tomorrow morning I am off to see my pain specialist bright and early. (8:15 a.m.) It will be the follow up the the rhizotomy I had 2 weeks ago, which in my opinion was a disaster. It did nothing, save for making things worse and then I couldn't get in to see the pain specialist because the schedule was overbooked.

I went to see my gp out of desperation and her best idea of how to help (bless her soul) was to put me on a big dose pulse of oral prednisone for 5 days to see if that would help. It did a little, but I still have the headache.

I am sure tomorrow I will get another shot of freezing in my head. Right now the idea of having yet another needle driven into my skull makes my stomach churn. I've been doing this since August. I've about lost track of how many I've had.

It's all feeling so damn hopeless. I am scheduled for a trial of Lidocaine in mid-January so I imagine I will have to do the freezing shots weekly till then. Right back where I started. And who knows if I will be able to get in over the holidays-it's unlikely my pain specialist will be available.

In the meantime, she mentioned trying to get a trial lead for the ONS at my expense but who knows when that will be. Everything seems to move so slowly and when I am in pain, I am not the most patient person.

Anyway, I am heading to bed before I make myself sick.
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