[howardpatrick58]

What is everyone doing about the pain from ON. My wort time is when I lay down in bed to sleep. The pain increases 100%. When I do finally wake up in the morning, I have a terrible headache. had every test there is, MRI, CT, x rays, all neg brain MRI, C spine, you name it. Has injections helped any one?

What kind of injections?

Thank you

[prairiegirl]

Originally Posted by howardpatrick58

What is everyone doing about the pain from ON. My wort time is when I lay down in bed to sleep. The pain increases 100%. When I do finally wake up in the morning, I have a terrible headache. had every test there is, MRI, CT, x rays, all neg brain MRI, C spine, you name it. Has injections helped any one?

What kind of injections?

Thank you

I have freezing shots in my head almost weekly. I am also on hydromorphone contin and plain hydromorphone round the clock. I take magnesium for nerve pain and I also take a sleeping pill nightly so I can rest. All of this is via my pain specialist. I was also asked to stop working. My ON is very bad-the are working on seeing if an implant would work for me, but the red tape is endless.

Sometimes it helps to put a large gel icepack in my pillowcase and lie on it. I also take torridol when the pain goes off the charts.

Seeing and being assessed by a pain specialist is the best thing you can do-they will help you figure it out and help you manage your pain.

[Jaime_S]

I have the nerve block for my ON and they work well for me, they usually last 2-3 months. It works for some and not for others...but I'm happy that the blocks work for me!
~Jaime~

[howardpatrick58]

Originally Posted by prairiegirl

I have freezing shots in my head almost weekly. I am also on hydromorphone contin and plain hydromorphone round the clock. I take magnesium for nerve pain and I also take a sleeping pill nightly so I can rest. All of this is via my pain specialist. I was also asked to stop working. My ON is very bad-the are working on seeing if an implant would work for me, but the red tape is endless.

Sometimes it helps to put a large gel icepack in my pillowcase and lie on it. I also take torridol when the pain goes off the charts.

Seeing and being assessed by a pain specialist is the best thing you can do-they will help you figure it out and help you manage your pain.

Ok thank you very much for your reply

[charliebubs]

The nerve blocks (steriod & local anaesthetic) have worked for me, but only short term. The longest relief I had was 10 weeks.

I'm now trying RF nerve treatment, bilaterally. So far it's been about 6 weeks and the pain has substantially reduced. It's not gone 100%, but probably 80%.

Good luck with your treatment.

[howardpatrick58]

Originally Posted by charliebubs

The nerve blocks (steriod & local anaesthetic) have worked for me, but only short term. The longest relief I had was 10 weeks.

I'm now trying RF nerve treatment, bilaterally. So far it's been about 6 weeks and the pain has substantially reduced. It's not gone 100%, but probably 80%.

Good luck with your treatment.

Thank you for you reply. I have been to pain doctors before with the injections, they do not seem to work. Now I am going back to another one in which my so called headache doctor wants me to. What are rf nerve treatments?

[paininhead]

Originally Posted by howardpatrick58

Thank you for you reply. I have been to pain doctors before with the injections, they do not seem to work. Now I am going back to another one in which my so called headache doctor wants me to. What are rf nerve treatments?

HowardPatrick,
Can you please tell more about the RF treatment. I had a neuroStim Trial and wondering if it is the same. Are you on a trial?
Paininhead

[paininhead]

Originally Posted by charliebubs

The nerve blocks (steriod & local anaesthetic) have worked for me, but only short term. The longest relief I had was 10 weeks.

I'm now trying RF nerve treatment, bilaterally. So far it's been about 6 weeks and the pain has substantially reduced. It's not gone 100%, but probably 80%.

Good luck with your treatment.

Charliebubs,
I just asked HowardPatrick about the RF treatment & meant to ask you - is this like a NeuroStim Trial? Please explain the treatment. I have ON since 07 but out of work since September 08. Did nerve block, a cervical facet attempt that was a disaster and NeruoStim Trial, I want to know about NeuroStim success/% of relief. I was wondering if RF is same of different. Thanks to you & everyone for input. I am still trying to find out if others have trouble driving. I have great difficulty with it - brings on shocks & body spasms and feeling of head swelling. I now am on cobra & desperate for relief so I can work before losing everything.
Painhead

[paininhead]

Originally Posted by howardpatrick58

What is everyone doing about the pain from ON. My wort time is when I lay down in bed to sleep. The pain increases 100%. When I do finally wake up in the morning, I have a terrible headache. had every test there is, MRI, CT, x rays, all neg brain MRI, C spine, you name it. Has injections helped any one?

What kind of injections?

Thank you

HowardPatrick,
I also have trouble lying down at times but not like I did back in October when I spent day & night screaming - I was on vicodin then - it didn't touch the pain. Strangely enough, a combination of neurontin and Lorazepam as needed has done more to help the pain than any commonly used pain killers. My cousin who has ON since the 80's explained to me that the reason Lorazepam works is it goes to the nerves- unlike most pain meds. The common practice is to start with nerve blocks (needles in back of your head) if no luck facet nerve block, and then more invasive methods. Most pain doc web sites give you the methods they will do. Like you, I am trying to find the magic solution. Good luck.
Paininhead