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Burntmarshmallow 03-10-2009 09:01 AM

PG I am thinking of you lots and lots, I replied in message but have not heard from you. I hope some kind of light is starting to shine and guide you out of the dark.
:hug: :hug:
dont give up looking for help and dont give up on the stim.
keeping you in my thoughts and prayers.!!
PEACE
BMW

prairiegirl 03-11-2009 01:41 AM

Quote:

Originally Posted by Burntmarshmallow (Post 478507)
PG I am thinking of you lots and lots, I replied in message but have not heard from you. I hope some kind of light is starting to shine and guide you out of the dark.
:hug: :hug:
dont give up looking for help and dont give up on the stim.
keeping you in my thoughts and prayers.!!
PEACE
BMW

Thanks T, I am still here. I have just been lying low as I have not been feeling great. I have dropped about 7 lbs. in the last 2 weeks-the meds are keeping me from feeling hungry and so I have to force myself to eat and drink. I have about 40 lbs. I can drop safely before it becomes an issue, but my blood sugar gets wonky and then I feel queasy. It's not fun. I've been stressed about the whole situation I told you about and I am now preparing to go through chemo to treat my MS, which is another stressor. I will likely be starting the second week of April, if I pass the pre-chemo workup.

The funny part is, I quit my job (self employed, but still) to reduce my stress and then all this stuff happens and I am more stressed! Of course none of it is helping the ON. I have another freezing shot in a few days, thank god. You know it's bad if I am "looking forward" to getting needles in my head! Who'd have thunk it?

Anyway, thanks for checking up on me. How is Destiny doing? I haven't had time to check. Hope she's recovering okay. Hope you are doing well.

prairiegirl 04-28-2009 12:35 AM

Hey gang, I am still breathing. I started chemo for my MS about 2 weeks ago. It was pretty awful-I was so sick and it took me 4 days till I could be upright, awake and eat something. I talked to my oncologist and hopefully we will try something better to manage the fall out for May.

My head is still trying to kill me and my pain specialist decided to be absent and unavailable without warning me, so by the time I see her in about a week, it will be a month since my last freezings. Usually I see her weekly. I am in horrific pain tonight. The headache decided to ramp up yesterday morning and though I am taking meds round the clock and a dose of torridol on top of it, it's not settling. :(

THe ONS thing is still a mess. THe new idea being bandied about is sending me out of province for treatment. I have no idea where they think I would get the money for that-it's completely insane when there are docs right here who do the same damn thing. I am *SO* not impressed with the redtape and politicking. I've about had enough of this nonsense.

Anyway, as you can see, my disposition is not great right now. I am feeling wrung out and now I have some girly problems which sounds like it's going to result in some surgery (oh joy!) and of course adding yet another doc to the roster.

I hope you are all faring better than I am. Just thought I would pop in and wave so you wouldn't think I've dropped off the face of the earth. (Though some days it feels like it.)

EE03 04-28-2009 08:01 AM

Prairiegirl, I'm glad you posted but I was hopeful that you'd be in better shape. I just had another direct block to the ON and this one only lasted a day. So, I'm still dealing with it.

Take good care and :hug:


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