[allimcd3]

I went to the doctor last week, was diagnosed with this occipital neuraglia and since then it's progressed to dizziness and nausea if I move wrong. I've sort of figured out how to move slower and keep my neck and head lined up better so it's milder but at first it was so violent it scared the crap out of me.

Anyone else with this have dizziness and nausea?? Luckily, I don't actually get sick because I don't think I could do that and keep my head still enough not to fall on the floor!

Allison

[allimcd3]

I just wanted to say I still have the pain, dizziness and nausea but since just having my third weekly massage I am doing a lot better. I have painfree periods here and there AND I can finally lay down and not hurt sometimes which is a great relief. I still haven't gone for the other stuff the PA mentioned but have done these three massages with a therapist that's been working on me for a few years and I trust. Because of my osteogenesis imperfecta (brittle bones, loose joints), I don't like to have strangers work on me. The idea of trusting someone I don't know with either of my weak points (femurs or neck).. *shivers*.

I still don't know what in the world they will do at PT besides heat and ice which I can do at home or massage, which can be better done by my own MT. Hmm... Any ideas?

Allison

[allimcd3]

I just wanted to add this, since NeuroTalk was so helpful to me and maybe this can help someone else some time in the future...

I went to my rheumo for a recheck as I take Reclast for bone density, and she has ON too and said the dizziness isn't part of it. She gets occipital blocks every 6 months and it works for her. She said her ON is due to stress. Anyway, so if the dizziness and nausea that goes along with it isn't ON related what the heck is it?

I am going back to the Neck and Back specialist November 16th so I'll ask. I sure wish I didn't have to pay a copay every darn time I want to ask a question. Grr. I still haven't even met the actual doctor, just seen the PA though she's very nice and seems knowledgeable.

I didn't do the PT because I never got a call back to schedule it and I didn't do that myself. PT has never worked much for me in the past and I've had more than a couple of setbacks due to PT so I'm not much of a fan.

The massage has been working great and this Sunday I was able to skip it and go back to every other week! I still have problems with it and my arm pain is coming back in the right and bothering me more in my left. That's partly over use with the 30+ years in a manual chair and nerve issues too.

I am feeling very overwhelmed with my weight right now and know I need to get it down but have no energy and too much discomfort to exercise. Ugg.

Allison

[Cindy Ann]

I have been diagnosed with ON about 1 year ago from an injury. I too suffer dizziness and nausea as a result. The worse the headache, the worse the dizziness and nausea. Medications don't seem to help much. I don't actually get sick, but sometimes I feel pretty close.

[Jaime_S]

I have had ON for a few years, and yes, I get dizzy and nauseous a lot when the pain is bad. But lately the pain has been kept under control with nerve blocks. But when the head pain was bad, the dizziness and nausea was bad.
~Jaime~