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-   -   How do your children .... (https://www.neurotalk.org/parents-living-with-disabilities/1564-children.html)

EthanNDomsMom 01-25-2008 07:54 PM

My 9 yr old son has a good grasp on my limitations that MS causes for me, and he really is good about it. Sometimes it makes him sad, but for the most part he deals with it very well. He was 6 when I got the dx. I also have a 6 month old son, and I don't anticipate any real problems for him in relation to MS. He won't ever know me to be any other way. My older son is a big help with the baby and other things I ask him to help me with, which has been alot lately. I'm in the midst of a bad flare that has been going on since the baby was 6 wks old. Fun!

cazzie 01-28-2008 12:36 PM

What age will they understand
my sister has an little boy he 3years old and i have to say well i cannot read to you but we can look at the pictues he now i use an white cane and i wear glassess all the time.

take care cazzie

LIZARD 01-28-2008 04:52 PM

Quote:

Originally Posted by cazzie (Post 199806)
What age will they understand
my sister has an little boy he 3years old and i have to say well i cannot read to you but we can look at the pictues he now i use an white cane and i wear glassess all the time.

take care cazzie

He should be able to understand in simple terms. Give him a basic explanation of your hydro and tell him that it makes your brain work harder to do certain things. That'll satisfy his curiosity for the moment, and as he gets older, his questions will be more sophisticated and involved. Just follow his cue and take them as they come. :)

LIZARD :)

kicker 01-29-2008 09:45 AM

Hoosier Mom's advice is good, she is talking about behavior mod. Ask your son's teacher about what approach they use in the classroom. (I once worked in class of Autustic children and there are so many degrees and behaviors.) It must be very hard for you. Is there an autism society near you? The ones in NJ (Where I once lived and worked in) offer respite care.
I can't imagine how hard it must be.

mommywms 02-16-2008 08:31 AM

my daughter is 10,but she was 8 when my ms first started. She took it pretty hard when I first started getting sick. But with learning about ms,and have her concerns answered,it took a big weight off her shoulders.
Now on the other hand my boy is 5 now,but was 3 when it started,he knows that mommy is *sick*,but that is all he knows. but neigther one of them can take it when im a flare,or having bad ms days.
The worst thing for my daughter to get over is my memory problems. As it interfears in her school,and after school things. I cant remeber when and where she is suppose to be. And that is probably the worst thing for me too.
I hate the fact that my 10 year old has to be my memory help,but shes good at it for now.


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