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06-28-2015, 12:10 AM | #1 | ||
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Junior Member
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Hardest part of being disabled. Finally realizing that I may never "get better"... Losing the use of my "good" leg for crutching from spinal damage, and that I need to fight for a specialized wheelchair so I don't end up living life in bed.
People see nothing obvious from the outside, they have no idea what's going on inside. Doctors that ignore obvious signs and symptoms and give poor treatment. Fighting for good medical care is exhausting sometimes. By comparison, there is no hard part of being a parent. The level of "hard" is much easier for me. Sure, it's tough to tell your kid you can't fully participate physically, and that you can't always be at the events. But there are so many other opportunities that make up for it, like my kid knows that he can always find me for a cuddle, to read a book, play Legos/magformers, pillow huts, or anything else you can imagine doing on a flat surface. Plus I am raising a kid with amazing compassion for others. |
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"Thanks for this!" says: | EnglishDave (06-28-2015) |
08-16-2015, 03:02 PM | #2 | ||
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Junior Member
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For me it was not noticing my daughters mental health going down hill.
I too have hidden disability from spinal injuries and a brain injury from a car accident. Age 8 she became carer. Over the next 8 years I gradually regained function, as I got better she got worse. She was losing her identity she felt. She was scared to let go of that mothering role. I didn't notice she was cutting herself. It took a long time in therapy to help her through. She was diagnosed with PTSD. I caused that and I felt rotten. She is happy and intelligent and in 2 nod year at uni studying forensic bio Physcology. The plus point was being here for my 3 children. Being able to spend time with them, as long as I was not fatigued. My children have missed out on sleepovers, parties, concerts even trips that I forgot to fill paperwork in for, or pay for! Poor memory plus poor executive control makes me a bit of a loose cannon. I can be embarrassing without realising. I don't have the filter to stop what you think falling out of your mouth, it can get me in bother and cost me friendships. I wish I had found this place years ago! |
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"Thanks for this!" says: | EnglishDave (08-16-2015) |
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