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What is the hardest part of being disabled and being a parent?

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Old 04-16-2007, 06:21 PM   #21
Pamster
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I know how you feel Donna, I am so happy that Jackie is a part of my life too, I would be so lonely without my little man in my life.
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Old 04-20-2007, 09:48 PM   #22
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Yep, I can totally relate.

I have to admit. I am so pleased with all 3 of my boys anymore.

My oldest has grown so much, and I wanted to say that I feel so disabled
somedays. But I am not too the biggest degree, but the most important
is that my oldest is a productive man now, he has a emotional handicap,
Learning disablities, adhd and he was on SSI, now holds a good job for
a while. I have a neat young grandson who is 5 and I can say I wouldn't
have thought I'd be able to brag about this one years ago.

ITs so nice to be able too.

My middle one is a college student now.

Donna
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Old 04-26-2007, 09:38 AM   #23
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My little guy is in fifth grade. They really grow up so fast. Thanks for posting Donna.
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Old 05-01-2007, 01:49 AM   #24
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I homeschool my son. There are so many activities that if I am having a bad day we either don't go, or I attempt the activity but we have to leave early. He says I have become a grouch since I hurt my knee. Daddy helps make up for some of the things I cannot do.

We still attend park days. There is another mom there that has fibromyalgia (sp?) so she can tell if my day is just not working for me.
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Old 08-09-2007, 08:54 AM   #25
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just bumping this up to say Hi and how are ya to Pamster and also so new members will find it, as this is a valuable thread
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Old 08-10-2007, 10:16 PM   #26
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As we are getting ready for our kids to go back to school.

My middle son is going to his 2nd year of college. And my youngest is going to 10th grade. I'm working on getting him ready. My son's both have disabilities and I'm working through my central abnormallities that are finally getting some help.

I'm also learning to live through my asthma, and allergies. And my husband hasn't realized that I need to have lights and ways to get around in the night so I don't fall. He has a lot to learn.

He is a overgrown kid and needs to realize that just because he thinks he does so much that doesn't mean he does it all.

Donna
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Old 09-16-2007, 10:35 AM   #27
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Hi Christine, Chemar & Donna,

Things are going well this year for Jackie in fifth grade, he got back into the more acedemic class, but I have a feeling it won't last, he's gotten a few bad reports and it's just a matter of time before he fristrates them too much and they push him back into the lower functioning class. I just wish there were more things I could do because it feels so helpless to just send him in and never know exactly what's going on with him at school. I wish he could tell me what's happening there. Oh well, other then that worry things are going well. He just turned eleven and is very happy so who could ask for more? Other then he learn to read and write better.
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Old 09-17-2007, 03:40 PM   #28
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Pam

When they start talking about putting him back in the low functioning
classes its time to say. No, I want to work on keeping him in the
higher functioning classes. Because he needs something to motivate
him to continue to succeed.

Maybe a suggestion is to find him someone to go with him to these
classes and to help him more. Also you might suggest they help
adapt his work more.

I would just tell them your available to meet more often to find
out how you can help.

That until they and you as a team have met more to work on this.
You aren't willing to put him back in the lower functioning classes.

Donna
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Old 09-22-2007, 04:15 PM   #29
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I agree 100% Donna, it's not fair to him to just put him back into the lower functioning class just to make their lives easier, the thing is they didn't really explain to me that was what happened the last time when they put him in the lower class, they just DID it and told me they were separating him from another student that was influencing him to do bad things.

I don't know how much I trust them anymore after that, because it really wasn't right to hear from his teacher that this is what went on, that he'd been pushed back and it was because of his behavior. Well his behavior isn't any easier but it's not violent anymore. Thankfully.
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Old 10-03-2007, 05:29 PM   #30
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Hi Pam,

This is a great thread. I read it from the beginning. I am glad that your feelings of guilt have lessened and that you've found some balance in your view of your role as mother. It doesn't matter what our limitations are mothers will always struggle with ourselves and what we did or didn't give our kids. Its this conflict, I believe that keeps us focused and striving to meet the varied needs of our children as best we can.

We have a few things in common. I have MS and was in a wheelchair for a while, and raising a 10 year old boy with autism spectrum disorder. I can relate to your struggle with intereacting with your son both physically and in terms of communication.

I just wanted to chime and let you know you are not alone with your difficulties. Keep plugging away, your deturmination will be empowering to your son, and keep you going.
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