I'm so sorry you're in so much pain ~KELLWANTSANSWERS~ I really do understand, but my son isn't at a point where he's taking care of me, he will push my wheelchair around out in public for me but that is more to keep him anchored to me then to really help me.

I'm so sorry you have so much pain, it's so hard to live with pain. I have chronic pain myself and though I take meds it doesn't get rid of all the pain. I hope you see a pain specialist for help ~KELLWANTSANSWERS~ because they are out there to help people like us.

I doubt your sweet daughter will resent you when she's older, she's going to love you no matter what. Just know that in your heart that she WANTS to help you and will always love you, nothing can change that. I understand about not wanting to window shop anymore and going to the stores is just for neccessities rather then for fun stuff or to window shop, I am like that too.

I hope you're having a pain free day today, and if you're not seeing someone for it maybe you can talk to your dr and get a referal, no one should have to be in pain 24-7, but there are many of us who are and it's a real shame. I really feel for you ~KELLWANTSANSWERS~.

I am Laura. I have MS and a Congenital Heart Defect. I was 37 (yesterday)
I am married. My kids are 14 and 6. The hardest thing for me is being tired and not being able to do alott with them.

Laura
Orlando Fl

Welcome Laura,

I am glad you posted. I understand feeling tired and not being able to do a lot with you kids. I wish I could do more with my son too, it's a hard feeling to accept. Welcome to NeuroTalk.

Like most everyone here, my endurance is practically nil...I'm more of a sprinter . But it seems as if everything that my son is interested in involves a field waaaaay out in the middle of nowhere, and having to climb a couple of berms to get to it. So the hardest part for me is just in arriving....the heart is willing, but the flesh is weak.

I also have brief pangs of wanting to be able to run, chase, rough-house with my son....we've modified most of those to suit us, but I agree that it's not the same.

I also agree wholeheartedly with the comments about kids really just wanting our presence/time. If you talk to kids today, whether their parents are AB or otherwise, they'll tell you the same thing themselves. They just want us to be there.....accessible.....approachable. Those are the things that they'll always remember and value.

This is a good topic, Pamster. Thank you to everyone for sharing your stories...it's healing to share these things.

I agree with you that it's very healing to share our stories like this, HoosierMama. I wish I could talk with my son better, it's so hard to communicate sometimes because he's autistic, yet he is doing much better even so it's really hard to know if he really gets what his daddy and I say to him sometimes. MOST of the time I think he does, so it's really just a matter of him being able to communicate back to us.

I wish it was easier for him, but we accept that it's going to get better with time, I am just glad to know he's reading finally! That is a huge achievement and I know he is reading sight words because his teacher tells us so and that she thinks he's ready to move up to the next level acedemically. That was so encouraging to hear.

Just had to share that. We saw her at walmart this weekend and she was tickled pink Jackie got to meet her four year old son and they interacted a bit, he gave my son a tootsie roll and Jackie thanked him. It was so sweet. It was wonderful that we got to see her and talk to her like that about his progress.

Hi, I'm Donna and I wanted to read this thread because I work as a advocate for both ab parents a disabled parents. But I found lots of you very inspiring. I wanted to tell Kelly that her daughter will always want
to do things for her.

THe reason is that she knows that she is appreciated, loved and that you
need her.

And Pamster, your son even though he is autistic, will always love you,
and want to please you. It shows in your writing about him. There will
come a day that he will want to b e a lot like Kelly's daughter.

And I am impressed by the other parents and kids too, just don't remember
their names. But you are setting good examples.

I have three boys with varying degrees of disabilities and I have to say
that in the last few years when I've had varying degrees of disabilities for
various times. When I've had dislocated bones, and concussions or post concussion syndromes, they have been there. My youngest has seizures
and he is always trying to learn the things to make my live even more
easier.

I am so glad that he is part of my life.

Donna

I know how you feel Donna, I am so happy that Jackie is a part of my life too, I would be so lonely without my little man in my life.