Yes, the back can hurt, if there is bowel inflammation.

Two years on doxy is enough to kill off all the beneficial bacteria and allow the nasties to take over.

Your son may have Crohn's.
I don't know of any multivit high in D.
I don't know of any multivit with probiotics.

The cephalexin will continue to kill off beneficial bacteria.
Your son may have Candida --this comes when beneficial bacteria are lost. Probiotics do not kill off Candida...this is a fungal organism and hard to get rid of.

If someone is low in D a high dose Vit D3 is usually given
He would need at least 2000-5000 IU daily to bring levels up and then perhaps 2000 IU daily after that. If he is really low, he needs even higher doses.

If the whole GI tract is inflamed I would start on EFAs NOW.
These fats rebuild the GI tract. I have a thread here on the subject. (some foods have them in it now, so you can get them that way...peanut butter, eggs, mayo etc.).
http://neurotalk.psychcentral.com/thread6092.html

This health crisis did not happen overnight, and it will not heal up overnight either. Doctors can give you drugs for symptoms, but they will not build new tissue, where there are
ulcers or inflammation.

A multivitamin is not enough. A multi is for daily use (as a replacement for certain foods). When drugs destroy your status completely, a person needs higher amounts.

Why is your son refusing to go to the bathroom? Holding it?
Is this about school? People with dysbiosis (nasty intestinal bugs) have very foul smelling stools. This may cause ridicule at school, and also be offensive to your son. Some boys will not go at school because there are no doors on the stalls, and they are subject to bullying in the bathrooms.
Also infections in the bowel, irritate the anu$ (there is a blocking filter for this term here), and infections/sores/ or fissures/ or even a fistula may occur. Pain in this area results in stricture of the sphincter and makes things worse. Hence, the patient avoids passing stools. This "leakage" may be from a fistula..and should be examined ASAP.

I guess you will have to prioritize things. Get the GI straightened out (it will never get better while using antibiotics-- only worse).

Chemar here has threads on how she healed her son's Crohn's disease...I'd PM her and find those links. It can be done but it requires effort and homework, and money since many of the most important things are NOT covered on insurance.

I would start looking for a holistic doctor who can perhaps put things back together for you. Traditional medicine does not know how to do this, as a rule.
I'd check and see if this spot has a holistic medical department:
http://www.hurleymc.com/

I found several hits for holistic medicine Flint on Google.
I'd seriously suggest it. The doctors who do the pyroluria testing are typically DAN doctors (Defeat Autism Now), but some others know about it too.

This is a huge problem.... so take it one step at a time.
Try to make food changes slowly, since people resist food changes (food is often a comfort).

And start researching gluten intolerance. Many many chronic GI problems go back to it. The stickies on our Gluten forum are an excellent starting place.

Hi,
Keep posting.
Maybe you'll be able to figure out some of this.

Can you write it into his plan that he is allowed to go to the library?

The teacher has to follow the guidelines. You might need to contact the school and remind / insist that that teacher follows the guidelines.
Get someone to talk to the school for you if you are not up to it.

Once you can sort out and start to fix whatever issues are going on in his GI track, his skin will start to improve. The two are closely related:
http://www.acne-resource.org/underst...digestive.html

That's good that his gastro is ordering tests for food allergies. That info will help you and him.


Mari

Yes I am still trying to figure out what moron decided the 400 IU of D3 was sufficient in our multivitamin. I did find one that has 1,000 IU. I had found a multivitamin that I was taking from Walmart that had probiotics in it but it was pretty expensive. The one he is taking now has a lot of vitamins and minerals and stuff in it. Tried to get one with a lot of extras in it. The kid drinks a lot of milk also, he would drink a gallon a day if allowed.

I just found the Department of Education guideline book and found out that those people sat there and lied to my face. I asked them at least twice if my son could test out of classes and they told me no. According to the guideline book he does have the option for any of his classes. I am flaming mad.

Well looks like I have my work cut our for me. My son's pediatrician took me aside yesterday and started the your son has more complaints than Carter has little liver pills speech. Red flag time. He still scheduled him for a neurologist for the weakness in his legs and his back pain but I am beginning to think he is starting to wonder if it is psychosomatic. I don't blame him, my son can be a drama queen but that doesn't make it any less real to him and it doesn't fix the problem.

You all have been extremely helpful now if I can just keep from going over with all this. I have a tendency with my own mental illness to obsess and stress and make my self sick. So slow and easy does it.

Thank you all so much.

Christina,

You are going to be fine.
I'm sending lots of good vibes.
M.

make sure they do a blood sugar on him. (fasting).

Or a glucose tolerance test. Abilify raises blood sugar and may
cause diabetes. Diabetes symptoms are weakness in muscles, fatigue, and excessive thirst. His complaints may be due to that, and peds don't always check for type II diabetes in a young person. (they should, because it is becoming common in this age group among teens who DON'T take atypical antipsychotics like Abilify.)

Hi Christina and thanks to mrsD for letting me know about this thread.

I just wanted to mention that my son has Tourette Syndrome with a spectrum of associated disorders like OCD, anxiety, ADD etc.... and has had IEP and 504 plans for school, with the 504 really being excellent for the accommodations he needed at school. The TSA has a lot of info on it and so perhaps you will pick up some tips there.
strategies http://www.tsa-usa.org/educ_advoc/ed...strat_main.htm
and
advocacy http://www.tsa-usa.org/educ_advoc/ed...cacy_main.html



in 2006, after two years of misdx GIT issues, he had a colonsocopy/endoscopy that revealed he has Crohn's Disease
and it was causing him agonizing pain, missed school and zero social/recreational life

he has a natural protocol for helping the GIT stuff that has really worked for him so not sure if this can be of help to you

Diet and stress play a major role in his symptom flares and remission , and he is also taking special supplements as anti-inflammatory and for healing the ulcerations
(let me know if you need the details)

the TS had been hard but manageable for my son at school but the GIT stuff was so bad he just could not cope and so we began the Virtual High school here in Florida for him (free and part of the public school system) and it made an enormous difference for him. He was registered in the county as "homeschooled" and did all his work, tests, etc online with real teachers who have IM and phone contact etc
I dont know how many states already have these in place.

anyway, I just wanted to stop by and let you know our story and try to help any way I can

That a holistic doctor can be an M.D...Some are D.Os too.

The Detroit Medical Center--Wayne State Univ. has some but that is quite far for you to go. Dr. Brownstein, is an example.

http://www.drbrownstein.com/default.asp

Holistic does not mean "quack" like some people think.

I think one of the big things with my son's GI problems and him holding it, which he did admit to doing, was being at school and not wanting to have a bowel movement at school, or being in public, say at the mall, being at a friends, or on the game and not wanting to get up and go so he would hold it. Even when he was little we had problems with that. It was a major hurdle for potty training. I had gone so far as to make an appt. with a pediatrician and she told me to ignore it. When he "had an accident" just very quietly and calmly clean him up, change his clothes and say nothing regarding the incident and within a little over a week there was 360* turn around.

I am currently having trouble with my youngest too. He was on a course of Miralax because he was saying it was too painful. So he began to hold it which is a vicious cycle. He is now 7. Is it me? What am I doing wrong? We have just started grounding the youngest from game days (video games) which for a little bit every other day. The youngest admits that he is too "busy" playing and does not want to get up and go. He is apologetic and it goes in stages where he does good for a week or two then starts having "accidents" again. Where does that stem from? It is not like he doesn't get a lot of attention. We are a big cuddly, loving family. He doesn't know about big brother because big brother pretty much stays with his grandma.

Wow does this ever sound like a "how do you feel about your mother" therapy session lol.

Chemar thank you so much for the info. I will definitely check out the links. He doesn't have a problem making friends but I do feel that the social life at school and all of the activity really make it hard for him to concentrate no matter how much Concerta they put him on.

Mrs. D I am all over the holistic healing and I think it is far underutilized especially in this country, but everybody knows big pharma has the medical community, plus in their pockets. I have had a few doctors make comments to me almost as an aside as though they were afraid I was going to announce to the world my doc said this. Most of them were middle eastern. The U.S. is so far behind in this area. It is sad because we really could safely treat and possible cure so many conditions. But alas as usual it is all about the not so holy dollar. Which unfortunately for me I have almost none of. Are you at all familiar with Truehope? One of my son's teacher's believe it or not sent me an email, when I had emailed him regarding my son's condition and asked for some extra credit work, with a link to the site saying that his family has used their site and other things and found it to be very helpful. Now that I look back I should have turned him in. Stupidly I must have erased the email because now I can't find it.

Ok I babble on again.

named Dave at BT bipolar...he was flamed and drummed off there and will not come back...I've invited him here.
He is a clinical social worker and was very positive about
TrueHope.

This is his website (I hope it is okay to put here).

http://bipolarodyssey.com/

You may have joined after he left. I cannot recall the timeline very well.

You say "we" began the virtual high school, is that as in you and some others or it was already available and is that at the state or county level. I have been trying to find something like that for my son for at least part time but am having a really rough time. I mean I can find charter schools and of course all kind of get your degree online type things but this is all so new to me so I am having a bit of trouble.

Thank you for the info. I really appreciate it. I did look at the sites and it gave me the idea of a couple of other places to check.

Thank you.