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-   -   Need some advice re: son (https://www.neurotalk.org/parents-with-bipolar-children/48996-advice-re-son.html)

Chemar 07-03-2008 04:34 PM

Hi Christina
sorry I meant my son enrolled in the state provided Virtual school

here it is
http://www.flvs.net/

Chemar 07-03-2008 04:37 PM

ps it is a free service for Florida students but I see they offer courses with fees for out of state students too
http://www.flvsgs.net/index.php/e_so...offerings.html

houghchrst 07-04-2008 12:48 PM

Thank you Chemar. I think I am making some progress. I am finding that in my state my son has a right to have a Personal Curriculum when all other things have been exhausted, I didn't know about an IEE, I think I recall asking about it and was corrected by an IEP person at the school. In my state according to the Pupil Accounting Manual there is no limit to the number of virtual learning courses that can be counted toward membership for the pupil. So I am hoping that because he wants the skills center we may be able to do partial actual seat time and partial virtual time.

I really wish I had someone who was not connected to the school but knew all the info and the ins and outs to sit and go over all this with me because between my Bipolar, meds, and Fibro I am lucky to have two cohesive thoughts. You have no idea how hard this is for me. I have been printing things out. Writing things down but I get ready to go to the next thing and I have lost it. Totally gone from my mind. Very frustrating.

I did find that his school does offer online courses for adult high school completion and also they are connected to GenNet which is a Virtual Learning site. I am making some progress, just a matter of connecting the dots.

MrsD he is having the food allergy test but he has been having problems since he was about 5. I am beginning to wonder if he has a cheese (mold) allergy. He loves cheese, eats a lot of it. Tons of milk, cheese. If he does then he inherited it from me. I tested positive and was just talking to the Gi doc's nurse and she says that the allergy can manifest itself in different ways. Krikey what happens if I get rid of cheese from my diet, BPD II, Fibro, Arthritis, Migraines, Anxiety, Insomnia LOL. Allergic to feathers so does that mean no eggs or chicken for me too?

MrsD I have posted a wanted on Freenet for the book by David Moyer but am thinking of buying a used one from Amazon.

Well I hope you all are having a relaxing 4th.

Thanks bunches.

Chemar 07-04-2008 04:01 PM

Christina
you could maybe also contact the TSA and see if they can point you to education advocates for BiPolar kids

that way you would have a clued up advocate who can represent you when approaching the school for the accommodations you need

altho most kids who use the Florida virtual high school only do some of their credits virtual and attend regular school for the rest, one can also do the full curriculum online to get the high school diploma. The virtual school also accepted my son's 504 plan and made those accommodations for him re the online courses too.

hoping those dots get connected for you soon. :hug:

houghchrst 08-05-2008 12:19 PM

Krikey I didn't know where to put this.
 
Hey all, well a quick update on my son's stomach. The UGI biopsy showed nothing but now his Pediatrician is saying that if he thinks he has, and I will be amned if I can recall it because I was so shocked, but I know it was something involving stomach lol, then our local hospital can't handle it and he will have to go to University of Michigan Medical Center. All depends on how things go after a week of Protonix. I am going to spend the month looking for a new doc for him. I like his doc but the poor man is in his mid to late 70's, most likely the latter, and seemed very lost and tired yesterday. I think my son just has too many problems for him to handle. So we can flip to a new doc at the beginning of the month so that gives me a month to choose.

In the meantime we are to be scheduled for a food allergy test, that they were supposed to have scheduled at the beginning of last month, that they couldn't find any recommendation of because they were reading the quick notes instead of the pathology report, the hand written notes from the GI's Nurse Specialist and the notes taken from the call from the GI's nurse specialist. I have never in my entire life come across a less efficient medical office. They lied to me on the phone and told me that the nurse specialist had no recollection of our conversation regarding the food allergy test. If I weren't in the middle of all this then I would change too as that is also my doc's office.

Today is my son's 16th birthday. We celebrated on Sunday so it feels kind of odd but I think he has plans with his grandma :rolleyes:.

I am just praying that everything is going to be okay. I don't know what the point of going to UofM is until after all other tests are done.

Mari 08-07-2008 03:22 AM

Hi, Christina,
The pediatrician is on the ball enough to refer you to U. Mich if necessary. That is good news. I suppose it is also good news in a way that they did not find anything in the UGI biopsy. Still, it will be nice to have answers.

It looks like you have dr shopping to to through. :(
I need to work on that too. I don't know why I would rather put up with bad to mediocre than get on the phone.
Maybe getting on the phone is easier when it is for someone else, like your own son.
Good luck in getting good drs and in getting the tests you need.
You have been busy. http://www.thesmilies.com/smilies/sports/running.gif

Mari


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