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Old 07-31-2008, 11:28 AM #1
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Default Here I sit crying.

Oh dear God I don't know how much longer I can do this. He told me I was stupid this morning. Yesterday he cursed at me. This is on the way to school. His stomach is worse. I spent two days on the phone talking to the doctor's offices. This morning after dropping him off the GI's nurse specialist calls me and tells me that my insurance will not pay for the Prevacid. Not until he tries their choices first. I begin to cry, his primary is out until Monday, GI until next Thursday. I tell her, I am making him go to school like this. He is miserable. She says if it is that bad then take him to ER.

So I get things ready for a long sit in ER. Little one is prepared. We pick him up and I don't tell him until he realizes we have passed the turning point. He does not want to go and sit and wait. I tell him we have to, he needs to. He becomes angry and I tell him I am tired of him telling me I am not doing enough to help him. If he wants to be treated like an adult then he needs to act like an adult. He tries to get out of the car at a stop light but it suddenly turns green so I never come to a complete stop. How many more until the hospital? One is too many. Fine he says, I won't say anything next time. I just won't go to school. So I turn around and take him back to where he is staying. I slam on the brakes in front and make him get out in the road. I think he flipped me the bird but I couldn't see his hand in the rear window, I am pretty sure he wasn't waving goodbye.

I come home and his teacher has left a message on my machine saying my son's grade went from a D to an E. He feels so awful that he can't concentrate and has been going down to the office and laying down.

On the way home I begin going over in my mind about any of the newer meds and if they could have affected his stomach and what he was on when the GI did his UGI. Suddenly I decide to check and see when he started the Celebrex. After the UGI, 2 weeks after, what is it, oh good God it is an NSAID. AMMIT!!! I knew that!!! What was his pediatrician thinking? You give a kid with stomach lesions an NSAID? One that powerful!!?? Moron!! So when I take my son's laundry back to him I will have to tell him to stop taking the Celebrex, he obviously has the same reaction as I do. I don't know what we will do about his back pain. Maybe after his bowels clear his back will get better.

I sit here crying because I feel so helpless. It is like dealing with Dr. Jekyll and Mr. Hyde. He and his girlfriend came over yesterday and hung out and watched movies, played on the computer and with his little brother. They even stayed for dinner which is unusual. When I pick him up in the morning he is a totally different person. Tired, grouchy, mean, angry, sick.

I just feel so drained. I don't have anything left for the rest of the day.
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Old 07-31-2008, 01:25 PM #2
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Oh Christina! I am so sorry you and your son are going through the ringer like this, I can't imagine what the GP was thinking when RX'n celebrex, I also think previcid will help, that is what I took when I had such a violent upper GI disturbance I could not keep even water down for very long. What do they want him to try first before authorizing previcid?

Forget school, sounds like he's lost it anyway, he just can't focus when he feels so sick. He can just take it again next year is all. What matters now is to get this taken care of now so he starts feeling better. I wish I could give you a real hug!
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Old 07-31-2008, 01:28 PM #3
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Hi,
It's going to get better the minute that summer school is over. Can you call off the whole thing? Esp. based on what you heard from the principal yesterday and from the teacher today?
Also, his meds are going to get better, esp since you pulled the Celebrex (dumb docs!).

He really should not be treating you like that.
But on the other hand, if he can't handle school or mornings, I can see why he is a mess on the way to school.

Sorry that you are going through this.

He's such a kid and yet lmost grown. My 16th and 17th years were the worst years of my life (even including my bad bipolar years later).

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Old 07-31-2008, 10:11 PM #4
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Okay Christiana

Can I ask what state your in? I might be able to give you some help with the school issues? Next prevacid did you say. I am going to send you a pm.

Donna
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Old 08-01-2008, 05:13 PM #5
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She lives in Michigan, and yes Previcid would help her son, I know what it was like getting that sick and it was the only thing that worked for me...Can you think of any org.s that can help her? That would be awesome Donna.
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Old 08-02-2008, 11:08 PM #6
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Sorry I'm having a rough weekend. But yes, I can find a organization
or probable because its Michigan two that can help.

But usually the serve parts of a state. So I'm also going to
put the name of the site to go look for the group too.

talliance.org

I believe I've got the right name. It is possible its ttalliance.org instead.

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Old 08-03-2008, 07:34 PM #7
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Thanks Donna, his primary will be in tomorrow and I am going to get him in. The insurance company said that the doc can call and actually talk to somebody in the pharmacy dept but I get the impression that doesn't happen very often.

The Prevacid is especially made for people who are also taking antibiotics so I don't understand why they can't make an exception with a doctor request.

What makes me mad is that these pills are $30 apiece. That is ludicrous.

He has stopped the Celebrex and is taking my Prilosec, I don't know what I will do when my scrip runs out, guess I will do every other day until refill time.

We were going to take him and his girlfriend out to dinner today for his birthday but with his stomach the way it is we decided to wait.

There is my boy, can you believe he is only fifteen, well sixteen in two days. When he hugs me my head lays on his chest. I am 5'4". He looks kinda like a punk (actually he can be if he catches you doing somebody wrong). He is actually a real momma's boy and he don't care who knows how much he loves his mom. All his friends know. He is a good kid. Still has a lot of maturing to do.

Thank you Donna, I will check out the site.
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Old 08-03-2008, 07:46 PM #8
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Donna according to what I see in my area it is Cause. I just got a some information about them from my son's therapist and I was going to have them advocate for us in the fall to help get a personal curriculum for my son.

What a coincidence! I will take a look around and see what I can find.
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Old 08-03-2008, 08:59 PM #9
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Love the pic, was this taken tonight? I hope he starts feeling better soon Christina. Keep us posted!
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Old 08-04-2008, 08:19 AM #10
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Default Too long to read!!!!

Thank you Pam, no this was about a week and a half ago. Self portrait in the bathroom. He likes to take pictures to post on MySpace. He is the one who talked me into setting up my own MySpace. He made a comment about a month ago that he wasn't the first in my friends list lol. Oooppss! Funny, I noticed the day before that lol.

Today is the first day of the last week of school and I can tell he feels a bit better or yesterday was a really good day. He wasn't mean and nasty, just tired. Asked if I would be able to pick him up early and I told him that his teacher said no early days this week, too much to learn for final on Thursday. He really needs to work hard this week. Just a passing grade is all he needs.

Tomorrow is his birthday so we took him out to get a piercing. NO!!! Just a little eyebrow. He wanted a tattoo but I told him no. At least with a piercing he can remove that. Bought him a couple of movies he wanted. Then we all went for ice cream. mmmmmm!! Next weekend maybe we can go out to eat. Give his tummy time to settle from the Celebrex and the Protonix time to work.

Gee they called me on Friday at 5:30 had the amn pharmacy # written wrong. She apologized for it today and said it could very well have been her fault but the other nurse who called that I can't stand made like my fault. So we went whole weekend with out his scrip. I call that number 3x a week at least and had bottle in my hand so know not my fault. Have appt. today to ask for referral for food allergy test. Am going to see about getting it done asap.

I am so grateful to you guys for letting me rant here. You probably see a new post and think oh no there she goes again about her kid lol. I would rant on MySpace but he is on my friends list LOL. He can read it, gee maybe that is a good idea. No probably not.

I have been doing a lot of research on help available to him for getting him through school. I wish I would have know this was all available back in 2005 when his grades first started falling. Then trouble started and things have been down hill. I just thought that the school would help. I talked to my ex mother inlaw, B's grandma, the EMI teacher's aide witch, and she says,"WELL, I don't know why the school would lie to you." (regarding available services, and options) then I told her what I was told and she didn't say anything. Then I told her I was going to get an advocate and she said " they don't know everything all the time either." This woman is a contradiction. She will say things flat out to seem humble but then she acts like she knows everything. Does that make sense? She will say "I don't know everything." but then she will go on and on like she does.

okay, I have bored myself and ranted, and vented, I am sorry dear reader
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