Parkinson's Disease Clinical Trials For posting and discussion of clinical trials related to Parkinson's Disease, and for the Parkinson Pipeline Project. All are welcome.


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Old 08-06-2010, 08:00 PM #1
Dianne G Dianne G is offline
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Location: Adel, GA
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Dianne G Dianne G is offline
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My husband has the pump. We modified a heavy-weight t-shirt by putting a pocket on the front just large enough for the pump to fit, with velcro at the top to close it, cut a hole through the back of the t-shirt for the tube to fit in. We just pull the tube through the hole and out of the pocket, then attach the pump, and drop the pump into the pocket, and seal the velcro (this prevents the pump from falling out when he bends over). Then he wears his normal shirt over the t-shirt. Maybe she can use some variation of this idea to suit her specific needs.
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Old 08-12-2010, 11:14 PM #2
cmeender cmeender is offline
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Location: We live in Racine Wisconsin USA
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cmeender cmeender is offline
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Quote:
Originally Posted by Dianne G View Post
My husband has the pump. We modified a heavy-weight t-shirt by putting a pocket on the front just large enough for the pump to fit, with velcro at the top to close it, cut a hole through the back of the t-shirt for the tube to fit in. We just pull the tube through the hole and out of the pocket, then attach the pump, and drop the pump into the pocket, and seal the velcro (this prevents the pump from falling out when he bends over). Then he wears his normal shirt over the t-shirt. Maybe she can use some variation of this idea to suit her specific needs.
Hi Diane: The T shirt idea sounds great; I will have to ask our daughter to try to make one. Currently Nancy has a shoulder holster similar to a gun holster but designed specifically for the pump and it works better than the one they originally gave us. Our daughter also made a fanny pack that is very light but my wife prefers the holster.
Cal
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Old 09-21-2010, 07:38 PM #3
Jim091866 Jim091866 is offline
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Default Has anyone in the duodopa trial had DBS?

I was wondering about this. I have been trying to get into this clinical trial but have not heard back from the sites that I have e-mailed to express my interest. I've had DBS but it was less than optimal results. I was told that my leads were marginal. Still having to take about 10-12 levodopa a day. Thanks
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Old 09-29-2010, 02:53 PM #4
wn0anc wn0anc is offline
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Default I have had the pump for 14 months.

The duodopa study has been a God send for me. I've had it for 14 months and without it I can't walk or take care of myself. With it, most people don't know I have PD. The reported problems with the PEG site that I read here are false. It is easy to care for and I've had no problems. Reply with questions and I'll try to answer them. Also I found a great way to carry the pump....

RD
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