Parkinson's Disease Clinical Trials For posting and discussion of clinical trials related to Parkinson's Disease, and for the Parkinson Pipeline Project. All are welcome.


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Old 07-30-2011, 05:22 AM #1
sald sald is offline
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sald sald is offline
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Default availabilty

I agree with you concerning availability of this drug when the study ended. It seems unethical to give patients an improved medicine then "pull the rug from
underneath them" after the trial is over. Especially since the improvement was
noticed the first time I took a dose.
If Impax labs does not want to give us compassionate medicine, then at least
let us have access to buy it with our neuro's prescription. But at least let us
have that option, don't just drop us. IPX-066 pushed my dosaging back to what
it was 6 years ago, 3X daily, as opposed to what i'm taking today, 5X a day.
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Old 07-30-2011, 08:21 AM #2
paula_w paula_w is offline
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paula_w paula_w is offline
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Default grrrr

Quote:
Originally Posted by sald View Post
I agree with you concerning availability of this drug when the study ended. It seems unethical to give patients an improved medicine then "pull the rug from
underneath them" after the trial is over. Especially since the improvement was
noticed the first time I took a dose.
If Impax labs does not want to give us compassionate medicine, then at least
let us have access to buy it with our neuro's prescription. But at least let us
have that option, don't just drop us. IPX-066 pushed my dosaging back to what
it was 6 years ago, 3X daily, as opposed to what i'm taking today, 5X a day.
That is despicable and they will say you did it for mankind. This isn't going to help us anytime soon [where have i heard that before]?

http://healthpolicyandreform.nejm.or...979&query=home
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